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PhD, University of Michigan at Ann Arbor
MA, University of Michigan at Ann Arbor
AB, Princeton University

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Publications

Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.

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Park ER, Kirchhoff AC, Donelan K, Perez GK, McDonald A, Bliss CC, Foor A, van Thiel Berghuijs KM, Waters AR, Durieux N, Leisenring W, Armstrong GT, Ponzani C, Lopez A, Vaca Lopez PL, Battaglia T, Galbraith AA, Kuhlthau KA. Health Insurance Navigation Tools Intervention: A Pilot Trial Within the Childhood Cancer Survivor Study. JCO Oncol Pract. 2024 Jul; 20(7):953-963.View Related Profiles.

Galbraith, Alison
Kuhlthau, Karen
Battaglia, Tracy

PMID: 38471048; PMCID: PMC11292596; DOI: 10.1200/OP.23.00680;

Hall DL, Fell L, Perez GK, Markwart M, Cammarata C, Si Y, Cantillon A, Park ER, Kuhlthau K. Development and feasibility of a virtual, synchronous mind-body resiliency intervention for fathers of children and youth with special healthcare needs. Brain Behav Immun Integr. 2024 Jan; 5. PMID: 38469332; PMCID: PMC10927257; DOI: 10.1016/j.bbii.2024.100052;

Chien AT, Spence SJ, Okumura MJ, Lu S, Chan CH, Houtrow AJ, Kuo DZ, Van Cleave JM, Shanske SA, Schuster MA, Kuhlthau KA, Toomey SL. Impairment Types and Combinations Among Adolescents and Young Adults with Disabilities: Colorado 2014-2018. Acad Pediatr. 2024; 24(4):587-595. PMID: 37925071; PMCID: PMC11056312; DOI: 10.1016/j.acap.2023.10.010;

Lo A, Lowery LA, Kuhlthau K, Parker RA, Chan J, Haddad F, Radom-Aizik S, Gehricke JG. Effects of physical exercise, LEGO, and Minecraft activities on anxiety in underserved children with autism: Study design and methodological strategies. MethodsX. 2023 Dec; 11:102332. PMID: 37649622; PMCID: PMC10463252; DOI: 10.1016/j.mex.2023.102332;

Fell LA, Albright CM, Kryszak EM, Butter E, Kuhlthau KA. Provider Perspectives on Telehealth Services for Children With Autism Spectrum Disorder During the Coronavirus Disease 2019 Pandemic. Acad Pediatr. 2023 Aug; 23(6):1196-1203. PMID: 36871611; PMCID: PMC9985515; DOI: 10.1016/j.acap.2023.02.016;

Kuhlthau KA, Traeger L, Luberto CM, Perez GK, Goshe BM, Fell L, Iannuzzi D, Park ER. Resiliency Intervention for Siblings of Children With Autism Spectrum Disorder: A Randomized Pilot Trial. Acad Pediatr. 2023 Aug; 23(6):1187-1195. PMID: 36460184

Fay C, Castro I, Sierra Velez D, Ruggiero CF, O'Connor G, Perkins M, Luo M, Sharifi M, Neri Mini F, Taveras EM, Kuhlthau K, Fiechtner L. Keys to Achieving Clinically Important Weight Loss: Perceptions of Responders and Nonresponders in the Clinic and Community Approaches to Healthy Weight Trial. Child Obes. 2023 Dec; 19(8):507-514. PMID: 36315223; PMCID: PMC10698771; DOI: 10.1089/chi.2022.0112;

Persaud A, Castro I, Simione M, Smith JD, O'Connor G, Sharifi M, Perkins M, Torres S, Taveras EM, Kuhlthau K, Fiechtner L. Multi-sector stakeholder's perceptions of determinants of successful implementation of a pediatric weight management intervention. Front Public Health. 2022; 10:954063. PMID: 36091513; PMCID: PMC9454190; DOI: 10.3389/fpubh.2022.954063;

Garrity BM, Perrin JM, Rodean J, Houtrow AJ, Shelton C, Stille C, McLellan S, Coleman C, Mann M, Kuhlthau K, Desmarais A, Berry JG. Annual Days With a Health Care Encounter for Children and Youth Enrolled in Medicaid: A Multistate Analysis. Acad Pediatr. 2023 Mar; 23(2):441-447.View Related Profiles.

Garrity, Brigid
Kuhlthau, Karen

PMID: 35863733

Fenning RM, Butter EM, Norris M, Chan J, Macklin EA, McKinnon-Bermingham K, Albright C, Stephenson KG, Scherr J, Moffitt J, Hess A, Steinberg-Epstein R, Kuhlthau KA. Optimizing Parent Training to Improve Oral Health Behavior and Outcomes in Underserved Children with Autism Spectrum Disorder. J Autism Dev Disord. 2023 Sep; 53(9):3683-3699. PMID: 35831693

Showing 10 of 192 results. Show More

Fell L, Goshe B, Traeger L, Perez G, Iannuzzi D, Park E, Kuhlthau K, Luberto C. Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder. J Autism Dev Disord. 2022 Dec; 52(12):5243-5252. PMID: 35657446

Fenning RM, Butter EM, Macklin EA, Norris M, Hammersmith KJ, McKinnon-Bermingham K, Chan J, Stephenson KG, Albright C, Scherr J, Moffitt JM, Lu F, Spaulding R, Guijon J, Hess A, Coury DL, Kuhlthau KA, Steinberg-Epstein R. Parent Training for Dental Care in Underserved Children With Autism: A Randomized Controlled Trial. Pediatrics. 2022 May 01; 149(5). PMID: 35211746

Simione M, Harshman S, Cooper-Vince CE, Daigle K, Sorbo J, Kuhlthau K, Fiechtner L. Examining Health Conditions, Impairments, and Quality of Life for Pediatric Feeding Disorders. Dysphagia. 2023 Feb; 38(1):220-226. PMID: 35486189; PMCID: PMC9616965; DOI: 10.1007/s00455-022-10455-z;

Kuhlthau KA, Ames SG, Ware A, Hoover CG, Wells N, Shelton C. Research on Family Health and Children and Youth With Special Health Care Needs. Acad Pediatr. 2022 03; 22(2S):S22-S27. PMID: 35248244

Kryszak EM, Albright CM, Fell LA, Butter EM, Kuhlthau KA. Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic. J Autism Dev Disord. 2022 Dec; 52(12):5083-5098. PMID: 35103899; PMCID: PMC8804366; DOI: 10.1007/s10803-022-05435-z;

Aryee E, Perrin JM, Iannuzzi D, Kuhlthau KA, Oreskovic NM. Association of Neighborhood Characteristics With Pediatric Asthma. Acad Pediatr. 2022 Jul; 22(5):818-823. PMID: 35031500

Jenkins AM, Berry JG, Perrin JM, Kuhlthau K, Hall M, Dunbar P, Hoover C, Garrity B, Crossman M, Auger K. What Types of Hospitals Do Adolescents and Young Adults With Complex Chronic Conditions Use? Acad Pediatr. 2022 Aug; 22(6):1033-1040.View Related Profiles.

Garrity, Brigid
Kuhlthau, Karen

PMID: 34936941

Luberto CM, Perez GK, Finkelstein-Fox L, Millstein RA, Fell L, Chad-Friedman E, Park ER, Kuhlthau KA. Acceptability of a Virtual Mind-Body Intervention for Parents of Children With Autism or Learning Disabilities. Glob Adv Health Med. 2021; 10:21649561211047804. PMID: 34917419; PMCID: PMC8669114; DOI: 10.1177/21649561211047804;

Lindly OJ, Shui AM, Stotts NM, Kuhlthau KA. Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study. Autism. 2022 Aug; 26(6):1460-1476. PMID: 34657479; PMCID: PMC9012781; DOI: 10.1177/13623613211052108;

Berry JG, Perrin JM, Hoover C, Rodean J, Agrawal RK, Kuhlthau KA. Health Care Insurance Adequacy for Children and Youth With Special Health Care Needs. Pediatrics. 2021 10; 148(4). PMID: 34535570

Lindly O, Eaves MC, Xu Y, Tarazi CL, Rao SR, Kuhlthau KA. Therapy use for U.S. school-aged children with developmental disabilities: State variation and determinants. Disabil Health J. 2022 01; 15(1):101198. PMID: 34489204; PMCID: PMC8812207; DOI: 10.1016/j.dhjo.2021.101198;

Lindly OJ, Cabral J, Mohammed R, Garber I, Mistry KB, Kuhlthau KA. "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children. J Autism Dev Disord. 2022 Aug; 52(8):3598-3611. PMID: 34435270; PMCID: PMC8873226; DOI: 10.1007/s10803-021-05240-0;

Iannuzzi D, Fell L, Luberto C, Goshe BM, Perez G, Park E, Crute S, Kuhlthau K, Traeger L. Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD. J Autism Dev Disord. 2022 Jun; 52(6):2430-2437. PMID: 34120258

Fair D, Park ER, Nipp RD, Rabin J, Hyland K, Kuhlthau K, Perez GK, Nathan PC, Armstrong GT, Oeffinger KC, Robison LL, Leisenring W, Kirchhoff AC. Material, behavioral, and psychological financial hardship among survivors of childhood cancer in the Childhood Cancer Survivor Study. Cancer. 2021 09 01; 127(17):3214-3222. PMID: 34061973; PMCID: PMC8489494; DOI: 10.1002/cncr.33613;

Mazurek MO, Kuhlthau K, Parker RA, Chan J, Sohl K. Autism and General Developmental Screening Practices Among Primary Care Providers. J Dev Behav Pediatr. 2021 Jun-Jul 01; 42(5):355-362. PMID: 33507041

Iannuzzi D, Hall M, Oreskovic NM, Aryee E, Broder-Fingert S, Perrin JM, Kuhlthau KA. Emergency Department Utilization of Adolescents and Young Adults with Autism Spectrum Disorder. J Autism Dev Disord. 2022 Feb; 52(2):617-622.View Related Profiles.

Kuhlthau, Karen
Broder-Fingert, Sarabeth

PMID: 33751374

Cheak-Zamora N, Farmer JG, Crossman MK, Malow BA, Mazurek MO, Kuhlthau K, Stobbe G, Loftin R, Mirza-Agrawal M, Tapia M, Hess A, Davis K, Sohl K. Provider Perspectives on the Extension for Community Healthcare Outcomes Autism: Transition to Adulthood Program. J Dev Behav Pediatr. 2021 Feb-Mar 01; 42(2):91-100. PMID: 33044397

Malhotra NR, Kuhlthau KA, Rosoklija I, Migliozzi M, Nelson CP, Schaeffer AJ. Children's experience with daytime and nighttime urinary incontinence - A qualitative exploration. J Pediatr Urol. 2020 Oct; 16(5):535.e1-535.e8. PMID: 33148456; PMCID: PMC9764822; DOI: 10.1016/j.jpurol.2020.10.002;

Fenning RM, Steinberg-Epstein R, Butter EM, Chan J, McKinnon-Bermingham K, Hammersmith KJ, Moffitt J, Shui AM, Parker RA, Coury DL, Wang PP, Kuhlthau KA. Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Oct; 50(10):3739-3747. PMID: 32112232

Eaton BR, Goldberg S, Tarbell NJ, Lawell MP, Gallotto SL, Weyman EA, Kuhlthau KA, Ebb DH, MacDonald SM, Yock TI. Long-term health-related quality of life in pediatric brain tumor survivors receiving proton radiotherapy at <4 years of age. Neuro Oncol. 2020 09 29; 22(9):1379-1387. PMID: 32064512; PMCID: PMC7523456; DOI: 10.1093/neuonc/noaa042;

Lindly O, Crossman M, Eaves M, Philpotts L, Kuhlthau K. Health Literacy and Health Outcomes Among Children With Developmental Disabilities: A Systematic Review. Am J Intellect Dev Disabil. 2020 09 01; 125(5):389-407. PMID: 32936893

Millstein RA, Lindly OJ, Luberto CM, Perez GK, Schwartz GN, Kuhlthau K, Park ER. An Exploration of Health Behaviors in a Mind-Body Resilience Intervention for Parents of Children with Developmental Disabilities. J Dev Behav Pediatr. 2020 08; 41(6):480-485. PMID: 32412991; PMCID: PMC7676456; DOI: 10.1097/DBP.0000000000000813;

Lindly OJ, Chan J, Fenning RM, Farmer JG, Neumeyer AM, Wang P, Swanson M, Parker RA, Kuhlthau KA. Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study. Autism. 2021 04; 25(3):840-853. PMID: 32693628

Kuhlthau KA, Luberto CM, Traeger L, Millstein RA, Perez GK, Lindly OJ, Chad-Friedman E, Proszynski J, Park ER. A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial. J Autism Dev Disord. 2020 Jul; 50(7):2513-2526. PMID: 30900195; PMCID: PMC6864241; DOI: 10.1007/s10803-019-03976-4;

Oreskovic NM, Kinane TB, Aryee E, Kuhlthau KA, Perrin JM. The Unexpected Risks of COVID-19 on Asthma Control in Children. J Allergy Clin Immunol Pract. 2020 Sep; 8(8):2489-2491. PMID: 32497662; PMCID: PMC7263244; DOI: 10.1016/j.jaip.2020.05.027;

Mazurek MO, Parker RA, Chan J, Kuhlthau K, Sohl K. Effectiveness of the Extension for Community Health Outcomes Model as Applied to Primary Care for Autism: A Partial Stepped-Wedge Randomized Clinical Trial. JAMA Pediatr. 2020 05 01; 174(5):e196306. PMID: 32150229; PMCID: PMC7063545; DOI: 10.1001/jamapediatrics.2019.6306;

Lindly OJ, Crossman MK, Shui AM, Kuo DZ, Earl KM, Kleven AR, Perrin JM, Kuhlthau KA. Healthcare access and adverse family impact among U.S. children ages 0-5?years by prematurity status. BMC Pediatr. 2020 04 17; 20(1):168. PMID: 32303218; PMCID: PMC7164160; DOI: 10.1186/s12887-020-02058-0;

Coury DL, Murray DS, Fedele A, Hess T, Kelly A, Kuhlthau KA. The Autism Treatment Network: Bringing Best Practices to All Children With Autism. Pediatrics. 2020 04; 145(Suppl 1):S13-S19. PMID: 32238527

Anixt JS, Murray DS, Coury DL, Kuhlthau KA, Eskra D, Seide J, Kelly A, Hess A, Lipkin PH, Law JK, Fedele A, Lannon C. Improving Behavior Challenges and Quality of Life in the Autism Learning Health Network. Pediatrics. 2020 04; 145(Suppl 1):S20-S29. PMID: 32238528

Smith KA, Gehricke JG, Iadarola S, Wolfe A, Kuhlthau KA. Disparities in Service Use Among Children With Autism: A Systematic Review. Pediatrics. 2020 04; 145(Suppl 1):S35-S46. PMID: 32238530

Crossman MK, Lindly OJ, Chan J, Eaves M, Kuhlthau KA, Parker RA, Coury DL, Zand DH, Nowinski LA, Smith K, Tomkinson M, Murray DS. Families' Experiences With Family Navigation Services in the Autism Treatment Network. Pediatrics. 2020 04; 145(Suppl 1):S60-S71. PMID: 32238532

Lindly OJ, Chan J, Levy SE, Parker RA, Kuhlthau KA. Service Use Classes Among School-aged Children From the Autism Treatment Network Registry. Pediatrics. 2020 04; 145(Suppl 1):S140-S150. PMID: 32238540

Mazurek MO, Harkins C, Menezes M, Chan J, Parker RA, Kuhlthau K, Sohl K. Primary Care Providers' Perceived Barriers and Needs for Support in Caring for Children with Autism. J Pediatr. 2020 06; 221:240-245.e1. PMID: 32143927

Coller RJ, Berry JG, Kuo DZ, Kuhlthau K, Chung PJ, Perrin JM, Hoover CG, Warner G, Shelton C, Thompson LR, Garrity B, Stille CJ. Health System Research Priorities for Children and Youth With Special Health Care Needs. Pediatrics. 2020 03; 145(3).View Related Profiles.

Garrity, Brigid
Kuhlthau, Karen

PMID: 32024751

Park ER, Perez GK, Millstein RA, Luberto CM, Traeger L, Proszynski J, Chad-Friedman E, Kuhlthau KA. A Virtual Resiliency Intervention Promoting Resiliency for Parents of Children with Learning and Attentional Disabilities: A Randomized Pilot Trial. Matern Child Health J. 2020 Jan; 24(1):39-53. PMID: 31650412

Mazurek MO, Stobbe G, Loftin R, Malow BA, Agrawal MM, Tapia M, Hess A, Farmer J, Cheak-Zamora N, Kuhlthau K, Sohl K. ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder. Autism. 2020 04; 24(3):633-644. PMID: 31581793

Oreskovic NM, Neumeyer AM, Duggan MP, Kuhlthau KA. Assessment of Walking Routes as a Possible Approach for Promoting Physical Activity in Children with Autism Spectrum Disorder: Brief Report. Dev Neurorehabil. 2020 Jan; 23(1):59-63. PMID: 31342814

Dunbar P, Hall M, Gay JC, Hoover C, Markham JL, Bettenhausen JL, Perrin JM, Kuhlthau KA, Crossman M, Garrity B, Berry JG. Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease. JAMA Netw Open. 2019 07 03; 2(7):e197613.View Related Profiles.

Garrity, Brigid
Kuhlthau, Karen

PMID: 31339547; PMCID: PMC6659144; DOI: 10.1001/jamanetworkopen.2019.7613;

Murray DS, S Anixt J, Coury DL, Kuhlthau KA, Seide J, Kelly A, Fedele A, Eskra D, Lannon C. Transforming an Autism Pediatric Research Network into a Learning Health System: Lessons Learned. Pediatr Qual Saf. 2019 Mar-Apr; 4(2):e152. PMID: 31321366; PMCID: PMC6494227; DOI: 10.1097/pq9.0000000000000152;

Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA. Parent Preferences for Health Outcomes Associated with Autism Spectrum Disorders. Pharmacoeconomics. 2019 04; 37(4):541-551. PMID: 30895565; PMCID: PMC6469598; DOI: 10.1007/s40273-019-00783-8;

Brown CC, Tilford JM, Payakachat N, Williams DK, Kuhlthau KA, Pyne JM, Hoefman RJ, Brouwer WBF. Measuring Health Spillover Effects in Caregivers of Children with Autism Spectrum Disorder: A Comparison of the EQ-5D-3L and SF-6D. Pharmacoeconomics. 2019 04; 37(4):609-620. PMID: 30864066; PMCID: PMC6469595; DOI: 10.1007/s40273-019-00789-2;

Kogan MD, Vladutiu CJ, Schieve LA, Ghandour RM, Blumberg SJ, Zablotsky B, Perrin JM, Shattuck P, Kuhlthau KA, Harwood RL, Lu MC. The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children. Pediatrics. 2018 12; 142(6). PMID: 30478241; PMCID: PMC6317762; DOI: 10.1542/peds.2017-4161;

Van Cleave J, Holifield C, Neumeyer AM, Perrin JM, Powers E, Van L, Kuhlthau KA. Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 Dec; 48(12):4222-4230. PMID: 29982896

Lindly OJ, Zuckerman KE, Kuhlthau KA. Healthcare access and services use among US children with autism spectrum disorder. Autism. 2019 08; 23(6):1419-1430. PMID: 30497274; PMCID: PMC6941887; DOI: 10.1177/1362361318815237;

Knutsen J, Crossman M, Perrin J, Shui A, Kuhlthau K. Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study. Autism. 2019 05; 23(4):858-868. PMID: 30047281; PMCID: PMC6348057; DOI: 10.1177/1362361318786490;

Mueller EL, Park ER, Kirchhoff AC, Kuhlthau K, Nathan PC, Perez GK, Rabin J, Hutchinson R, Oeffinger KC, Robison LL, Armstrong GT, Leisenring WM, Donelan K. Insurance, chronic health conditions, and utilization of primary and specialty outpatient services: a Childhood Cancer Survivor Study report. J Cancer Surviv. 2018 10; 12(5):639-646. PMID: 29943170; PMCID: PMC6152932; DOI: 10.1007/s11764-018-0700-1;

Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA. Care Quality and Spending Among Commercially Insured Children With Disabilities. Acad Pediatr. 2019 04; 19(3):291-299. PMID: 29932986

Kamran SC, Goldberg SI, Kuhlthau KA, Lawell MP, Weyman EA, Gallotto SL, Hess CB, Huang MS, Friedmann AM, Abrams AN, MacDonald SM, Pulsifer MB, Tarbell NJ, Ebb DH, Yock TI. Quality of life in patients with proton-treated pediatric medulloblastoma: Results of a prospective assessment with 5-year follow-up. Cancer. 2018 08; 124(16):3390-3400. PMID: 29905942

Nipp RD, Shui AM, Perez GK, Kirchhoff AC, Peppercorn JM, Moy B, Kuhlthau K, Park ER. Patterns in Health Care Access and Affordability Among Cancer Survivors During Implementation of the Affordable Care Act. JAMA Oncol. 2018 06 01; 4(6):791-797. PMID: 29596618; PMCID: PMC5885177; DOI: 10.1001/jamaoncol.2018.0097;

Kirchhoff AC, Nipp R, Warner EL, Kuhlthau K, Leisenring WM, Donelan K, Rabin J, Perez GK, Oeffinger KC, Nathan PC, Robison LL, Armstrong GT, Park ER. "Job Lock" Among Long-term Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. JAMA Oncol. 2018 05 01; 4(5):707-711. PMID: 29049517; PMCID: PMC6140326; DOI: 10.1001/jamaoncol.2017.3372;

Perez GK, Kirchhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park ER. Mental health insurance access and utilization among childhood cancer survivors: a report from the childhood cancer survivor study. J Cancer Surviv. 2018 08; 12(4):528-536. PMID: 29658062; PMCID: PMC6054538; DOI: 10.1007/s11764-018-0691-y;

Kuhlthau KA, Bailey LC, Baer BL, Coury DL, Law JK, Murray DS, Razzaghi H, Forrest CB, Lipkin PH. Large Databases for Pediatric Research on Children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2018 Feb/Mar; 39(2):168-176. PMID: 29239865

Fiechtner L, Perkins M, Biggs V, Langhans N, Sharifi M, O'Connor G, Price S, Locascio J, Kuhlthau K, Kwass JA, Nelson C, Land T, Longjohn M, Lawson V, Hohman K, Taveras EM. Rationale and design of the Clinic and Community Approaches to Healthy Weight Randomized Trial. Contemp Clin Trials. 2018 04; 67:16-22. PMID: 29330083; PMCID: PMC5871582; DOI: 10.1016/j.cct.2018.01.002;

Iezzoni LI, Wint AJ, Boudreau AA, Blauwet CA, Kuhlthau KA. Views of teenage children about the effects of a Parent's mobility disability. Disabil Health J. 2018 07; 11(3):405-411. PMID: 29331657; PMCID: PMC6005728; DOI: 10.1016/j.dhjo.2017.12.008;

Ventura LM, Grieco JA, Evans CL, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI, Pulsifer MB. Executive functioning, academic skills, and quality of life in pediatric patients with brain tumors post-proton radiation therapy. J Neurooncol. 2018 Mar; 137(1):119-126. PMID: 29214403

Park ER, Kirchhoff AC, Nipp RD, Donelan K, Leisenring WM, Armstrong GT, Kuhlthau KA. Assessing Health Insurance Coverage Characteristics and Impact on Health Care Cost, Worry, and Access: A Report From the Childhood Cancer Survivor Study. JAMA Intern Med. 2017 12 01; 177(12):1855-1858. PMID: 28973059; PMCID: PMC5820718; DOI: 10.1001/jamainternmed.2017.5047;

Payakachat N, Tilford JM, Kuhlthau KA. Parent-Reported Use of Interventions by Toddlers and Preschoolers With Autism Spectrum Disorder. Psychiatr Serv. 2018 02 01; 69(2):186-194. PMID: 29032701

Magnusson DM, Minkovitz CS, Kuhlthau KA, Caballero TM, Mistry KB. Beliefs Regarding Development and Early Intervention Among Low-Income African American and Hispanic Mothers. Pediatrics. 2017 Nov; 140(5). PMID: 29038343

Culler CS, Kotelchuck M, Declercq E, Kuhlthau K, Jones K, Yoder KM. A School-Based Dental Program Evaluation: Comparison to the Massachusetts Statewide Survey. J Sch Health. 2017 Oct; 87(10):784-789.View Related Profiles.

Culler, Corinna
Declercq, Eugene
Kuhlthau, Karen

PMID: 28876475

Nipp RD, Kirchhoff AC, Fair D, Rabin J, Hyland KA, Kuhlthau K, Perez GK, Robison LL, Armstrong GT, Nathan PC, Oeffinger KC, Leisenring WM, Park ER. Financial Burden in Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. J Clin Oncol. 2017 Oct 20; 35(30):3474-3481. PMID: 28817372; PMCID: PMC5648170; DOI: 10.1200/JCO.2016.71.7066;

Clark ME, Cummings BM, Kuhlthau K, Frassica N, Noviski N. Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: A Pilot Study. J Intensive Care Med. 2019 Nov-Dec; 34(11-12):973-977. PMID: 28797189

Kuhlthau KA, McDonnell E, Coury DL, Payakachat N, Macklin E. Associations of quality of life with health-related characteristics among children with autism. Autism. 2018 10; 22(7):804-813. PMID: 28691502

Zuckerman KE, Friedman NDB, Chavez AE, Shui AM, Kuhlthau KA. Parent-Reported Severity and Health/Educational Services Use Among US Children with Autism: Results from a National Survey. J Dev Behav Pediatr. 2017 May; 38(4):260-268. PMID: 28410256; PMCID: PMC5575794; DOI: 10.1097/DBP.0000000000000437;

Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Okumura MJ, Kuo DZ, Houtrow AJ, Van Cleave J, Landrum MB, Jang J, Janmey I, Furdyna MJ, Schuster MA. Quality of Primary Care for Children With Disabilities Enrolled in Medicaid. Acad Pediatr. 2017 May - Jun; 17(4):443-449. PMID: 28286057; DOI: 10.1016/j.acap.2016.10.015;

Erickson Warfield M, Crossman M, Neumeyer AM, O'Brien J, Kuhlthau KA. Transition tools and access to adult primary care. 2017. View Publication

Mouw KW, Yeap BY, Caruso P, Fay A, Misra M, Sethi RV, MacDonald SM, Chen YL, Tarbell NJ, Yock TI, Freitag SK, Munzenrider JE, Grabowski E, Katz M, Kuhlthau K, DeCastro D, Heidary G, Ciralsky J, Mukai S, Shih HA. Analysis of patient outcomes following proton radiation therapy for retinoblastoma. Adv Radiat Oncol. 2017 Jan-Mar; 2(1):44-52. PMID: 28607957; PMCID: PMC5465815; DOI: 10.1016/j.adro.2016.11.002;

Kuhlthau KA, Nipp RD, Shui A, Srichankij S, Kirchhoff AC, Galbraith AA, Park ER. Health insurance coverage, care accessibility and affordability for adult survivors of childhood cancer: a cross-sectional study of a nationally representative database. J Cancer Surviv. 2016 Dec; 10(6):964-971.View Related Profiles.

Galbraith, Alison
Kuhlthau, Karen

PMID: 27072683; PMCID: PMC8109280; DOI: 10.1007/s11764-016-0542-7;

Kuhlthau KA, Delahaye J, Erickson-Warfield M, Shui A, Crossman M, van der Weerd E. Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers. Pediatrics. 2016 Feb; 137 Suppl 2:S158-66. PMID: 26908471; DOI: 10.1542/peds.2015-2851N;

Broder-Fingert S, Shui A, Ferrone C, Iannuzzi D, Cheng ER, Giauque A, Connors S, McDougle CJ, Donelan K, Neumeyer A, Kuhlthau K. A Pilot Study of Autism-Specific Care Plans During Hospital Admission. Pediatrics. 2016 Feb; 137 Suppl 2:S196-204.View Related Profiles.

Kuhlthau, Karen
Broder-Fingert, Sarabeth

PMID: 26908475; DOI: 10.1542/peds.2015-2851R;

Perrin JM, Coury DL, Klatka K, Winklosky B, Wolfe A, Murray D, Kuhlthau KA. The Autism Intervention Research Network on Physical Health and the Autism Speaks Autism Treatment Network. Pediatrics. 2016 02; 137 Suppl 2:S67-71. PMID: 26908479; DOI: 10.1542/peds.2015-2851D;

Yock T, Goldberg SI, Vatner R, Kuhltau KA. RO-21A PROSPECTIVE ASSESSMENT OF HRQOL OUTCOMES IN MEDULLOBLASTOMA PATIENTS TREATED WITH PROTON RADIOTHERAPY (PT). Neuro-Oncology. 2016; 18(suppl 3). View Publication

Iezzoni LI, Wint AJ, Kuhlthau KA, Boudreau AA. Adults' recollections and perceptions of childhood caregiving to a parent with significant physical disability. Disabil Health J. 2016 Apr; 9(2):208-17. PMID: 26712460; PMCID: PMC4808597; DOI: 10.1016/j.dhjo.2015.10.009;

Tilford JM, Payakachat N, Kuhlthau KA, Pyne JM, Kovacs E, Bellando J, Williams DK, Brouwer WB, Frye RE. Treatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects. J Autism Dev Disord. 2015 Nov; 45(11):3613-23. PMID: 26126749; PMCID: PMC4609586; DOI: 10.1007/s10803-015-2507-5;

Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Houtrow AJ, Kuo DZ, Okumura MJ, Van Cleave JM, Johnson CK, Mahoney LL, Martin J, Landrum MB, Schuster MA. Development of the Children With Disabilities Algorithm. Pediatrics. 2015 Oct; 136(4):e871-8. PMID: 26416938; DOI: 10.1542/peds.2015-0228;

Gnanasekaran S, Choueiri R, Neumeyer A, Ajari O, Shui A, Kuhlthau K. Impact of employee benefits on families with children with autism spectrum disorders. Autism. 2016 Jul; 20(5):616-22. PMID: 26341992; DOI: 10.1177/1362361315598891;

Warfield ME, Crossman MK, Delahaye J, Der Weerd E, Kuhlthau KA. Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD). J Autism Dev Disord. 2015 Jul; 45(7):2209-17. PMID: 25724445; DOI: 10.1007/s10803-015-2386-9;

Ronis SD, Baldwin CD, Blumkin A, Kuhlthau K, Szilagyi PG. Patient-Centered Medical Home and Family Burden in Attention-Deficit Hyperactivity Disorder. J Dev Behav Pediatr. 2015 Jul-Aug; 36(6):417-25. PMID: 26035140; DOI: 10.1097/DBP.0000000000000161;

Pulcini CD, Perrin JM, Houtrow AJ, Sargent J, Shui A, Kuhlthau K. Examining Trends and Coexisting Conditions Among Children Qualifying for SSI Under ADHD, ASD, and ID. Acad Pediatr. 2015 Jul-Aug; 15(4):439-43. PMID: 26142070; DOI: 10.1016/j.acap.2015.05.002;

Pulsifer MB, Sethi RV, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI. Early Cognitive Outcomes Following Proton Radiation in Pediatric Patients With Brain and Central Nervous System Tumors. Int J Radiat Oncol Biol Phys. 2015 Oct 1; 93(2):400-7. PMID: 26254679; PMCID: PMC4955513; DOI: 10.1016/j.ijrobp.2015.06.012;

Van Cleave J, Boudreau AA, McAllister J, Cooley WC, Maxwell A, Kuhlthau K. Care coordination over time in medical homes for children with special health care needs. Pediatrics. 2015 Jun; 135(6):1018-26. PMID: 25963012; DOI: 10.1542/peds.2014-1067;

Kirchhoff AC, Parsons HM, Kuhlthau KA, Leisenring W, Donelan K, Warner EL, Armstrong GT, Robison LL, Oeffinger KC, Park ER. Supplemental security income and social security disability insurance coverage among long-term childhood cancer survivors. J Natl Cancer Inst. 2015 Jun; 107(6):djv057. PMID: 25770148; PMCID: PMC4650970; DOI: 10.1093/jnci/djv057;

Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland KA, Diller LR, Recklitis CJ, Kuhlthau KA. Childhood Cancer Survivor Study participants' perceptions and understanding of the Affordable Care Act. J Clin Oncol. 2015 Mar 1; 33(7):764-72. PMID: 25646189; PMCID: PMC4334780; DOI: 10.1200/JCO.2014.58.0993;

Kuhlthau K, Luff D, Delahaye J, Wong A, Yock T, Huang M, Park ER. Health-Related Quality of Life of Adolescent and Young Adult Survivors of Central Nervous System Tumors: Identifying Domains From a Survivor Perspective. J Pediatr Oncol Nurs. 2015 Nov-Dec; 32(6):385-93. PMID: 25616371; DOI: 10.1177/1043454214563752;

Eaton BR, Kuhlthau KA, Goldberg S, Srichankij S, Grieco J, Pulsifer M, Macdonald SM, Tarbell N, Yock T. Prospective Assessment of Health Related Quality of Life and School Functioning Among Children Who Received Proton Radiation Therapy for a Brain Tumor at = 3 Years Old. International journal of radiation oncology, biology, physics. 2015; 93(3):S33. View Publication
Grieco J, Eaton BR, Pulsifer B, Evans C, Kuhlthau KA, Macdonald SM, Tarbell N, Yock T . Developmental and Behavioral Functioning in Very Young Children Following Proton Radiation Therapy for Brain Tumors. International journal of radiation oncology, biology, physics. 2015; 93(3). View Publication
Clark M, Cummings B, Kuhlthau KA, Frassica N, Noviski N. Nonmedical Out-of-Pocket Expenses, Work Absenteeism, and Productivity for Families With a Child Admitted to the Pediatric Intensive Care Unit. Chest. 2015; 148(4):233A. View Publication

Yock TI, Bhat S, Szymonifka J, Yeap BY, Delahaye J, Donaldson SS, MacDonald SM, Pulsifer MB, Hill KS, DeLaney TF, Ebb D, Huang M, Tarbell NJ, Fisher PG, Kuhlthau KA. Quality of life outcomes in proton and photon treated pediatric brain tumor survivors. Radiother Oncol. 2014 Oct; 113(1):89-94. PMID: 25304720; PMCID: PMC4288853; DOI: 10.1016/j.radonc.2014.08.017;

Payakachat N, Tilford JM, Kuhlthau KA, van Exel NJ, Kovacs E, Bellando J, Pyne JM, Brouwer WB. Predicting health utilities for children with autism spectrum disorders. Autism Res. 2014 Dec; 7(6):649-63. PMID: 25255789; PMCID: PMC4270935; DOI: 10.1002/aur.1409;

Kuhlthau KA, Mistry KB, Forrest CB, Dougherty D. Advancing the science of measurement in pediatric quality of care. Acad Pediatr. 2014 Sep-Oct; 14(5 Suppl):S1-3. PMID: 25169448; DOI: 10.1016/j.acap.2014.06.016;

Hoefman R, Payakachat N, van Exel J, Kuhlthau K, Kovacs E, Pyne J, Tilford JM. Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol. J Autism Dev Disord. 2014 Aug; 44(8):1933-45. PMID: 24577786; PMCID: PMC4167350; DOI: 10.1007/s10803-014-2066-1;

Zuckerman KE, Lindly OJ, Bethell CD, Kuhlthau K. Family impacts among children with autism spectrum disorder: the role of health care quality. Acad Pediatr. 2014 Jul-Aug; 14(4):398-407. PMID: 24976352; PMCID: PMC4076703; DOI: 10.1016/j.acap.2014.03.011;

Boudreau AA, Perrin JM, Goodman E, Kurowski D, Cooley WC, Kuhlthau K. Care coordination and unmet specialty care among children with special health care needs. Pediatrics. 2014 Jun; 133(6):1046-53. PMID: 24864172; DOI: 10.1542/peds.2013-2174;

Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA. Economic burden of childhood autism spectrum disorders. Pediatrics. 2014 Mar; 133(3):e520-9. PMID: 24515505; PMCID: PMC7034397; DOI: 10.1542/peds.2013-0763;

Kuhlthau KA, Warfield ME, Hurson J, Delahaye J, Crossman MK. Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism. 2015 Apr; 19(3):262-71. PMID: 24497626; DOI: 10.1177/1362361313518125;

Isong I, Dantas L, Gerard M, Kuhlthau K. Oral Health Disparities and Unmet Dental Needs among Preschool Children in Chelsea, MA: Exploring Mechanisms, Defining Solutions. J Oral Hyg Health. 2014; 2. PMID: 25614878; PMCID: PMC4299657; DOI: 10.4172/2332-0702.1000138;

Kuhlthau KA, Payakachat N, Delahaye J, Hurson J, Pyne J, Kovacs E, Tilford JM. Quality of life for parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders. 2014; 8(10):1339-1350. View Publication
Kuhlthau KA, Erickson Warfield M, Delahaye J, Shui A, Crossman M, van der Weerd E . Pediatrics. Health Care Transition Services for Youth with Autism Spectrum Disorders. 2014; 137(Suppl). View Publication
Delahaye J, Kovacs E, Sikora D, Hall TA, Orlich F, Clemons TE, van der Weerd E, Glick L, Kuhlthau KA. The relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders. 2014; 8(3):292-303. View Publication
Lucas J, Kuhlthau KA, Delahaye J, Pulsifer M, Weyman EA, McBride S, Macdonald SM, Tarbell N, Yock T. PEDIATRIC BLOOD & CANCER. LONGITUDINAL CHILD AND PARENT REPORTED HEALTH RELATED QUALITY OF LIFE IN CHILDREN ENROLLED ON A PROTON RADIOTHERAPY PHASE II MEDULLOBLASTOMA STUDY. 2014.
Dyer MA, Yeap BY, Kovtun K, Shih HA, Kuhlthau KA, Miller KK, Oh KS, Klibanski A, Swearingen B, Loeffler JS. Quality of Life in Patients Treated With Surgery Alone Versus Surgery and Radiation for Nonfunctioning Pituitary Adenomas. International journal of radiation oncology, biology, physics. 2014; 90(1):S300. View Publication

McAllister JW, Cooley WC, Van Cleave J, Boudreau AA, Kuhlthau K. Medical home transformation in pediatric primary care--what drives change? Ann Fam Med. 2013 May-Jun; 11 Suppl 1:S90-8. PMID: 23690392; PMCID: PMC3707252; DOI: 10.1370/afm.1528;

McBride SM, Kuhlthau KA, Blossom J, Van der Weerd E, Delahaye J, Macdonald SM, Tarbell N, Yock T. The Impact of Socioeconomic Factors on Health-Related Quality-of-Life (HR-QOL) After Proton Radiation Therapy for a Pediatric CNS Cohort. International Journal of Radiation OncologyBiologyPhysics. 2013; 87(2):S593-S594. View Publication
Payakachat N, Tilford Mick J, Kovacs E, Delahaye J, Kuhlthau KA. Relationship between Child Health-related Quality of Life and SF6D scores for children with autism and their caregivers. Quality of Life Research. 2013.
Kuhlthau KA, Kovacs E, Hall T, Clemmons T, Orlich F, Delahaye J, Sikora D. Health-related quality of life for children with ASD: Associations with behavioral characteristics. Research in Autism Spectrum Disorders. 2013; 7(9):1035-1042. View Publication
Sikora D, Moran E, Orlich F, Hall TA, Kovacs EA, Delahaye J, Clemons TE, Kuhlthau KA. The relationship between family functioning and behavior problems in children with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013; 7(2):307-315. View Publication

Pulcini CD, Kotelchuck M, Kuhlthau KA, Nozzolillo AA, Perrin JM. Potential savings from redetermining disability among children receiving supplemental security income benefits. Acad Pediatr. 2012 Nov-Dec; 12(6):489-94. PMID: 22989732; PMCID: PMC3501557; DOI: 10.1016/j.acap.2012.07.001;

Arauz Boudreau AD, Van Cleave JM, Gnanasekaran SK, Kurowski DS, Kuhlthau KA. The medical home: relationships with family functioning for children with and without special health care needs. Acad Pediatr. 2012 Sep-Oct; 12(5):391-8. PMID: 22884797; DOI: 10.1016/j.acap.2012.06.001;

Payakachat N, Tilford JM, Kovacs E, Kuhlthau K. Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications. Expert Rev Pharmacoecon Outcomes Res. 2012 Aug; 12(4):485-503. PMID: 22971035; PMCID: PMC3502071; DOI: 10.1586/erp.12.29;

Tilford JM, Payakachat N, Kovacs E, Pyne JM, Brouwer W, Nick TG, Bellando J, Kuhlthau KA. Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments. Pharmacoeconomics. 2012 Aug 1; 30(8):661-79. PMID: 22788258; PMCID: PMC3423960; DOI: 10.2165/11597200-000000000-00000;

Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER. Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study. Support Care Cancer. 2013 Feb; 21(2):377-83. PMID: 22717916; PMCID: PMC3887442; DOI: 10.1007/s00520-012-1523-7;

Park ER, Kirchhoff AC, Zallen JP, Weissman JS, Pajolek H, Mertens AC, Armstrong GT, Robison LL, Donelan K, Recklitis CJ, Diller LR, Kuhlthau KA. Childhood Cancer Survivor Study participants' perceptions and knowledge of health insurance coverage: implications for the Affordable Care Act. J Cancer Surviv. 2012 Sep; 6(3):251-9. PMID: 22592507; PMCID: PMC4706983; DOI: 10.1007/s11764-012-0225-y;

Van Cleave J, Kuhlthau KA, Bloom S, Newacheck PW, Nozzolillo AA, Homer CJ, Perrin JM. Interventions to improve screening and follow-up in primary care: a systematic review of the evidence. Acad Pediatr. 2012 Jul-Aug; 12(4):269-82. PMID: 22575809; PMCID: PMC4727528; DOI: 10.1016/j.acap.2012.02.004;

Kuhlthau KA, Pulsifer MB, Yeap BY, Rivera Morales D, Delahaye J, Hill KS, Ebb D, Abrams AN, Macdonald SM, Tarbell NJ, Yock TI. Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy. J Clin Oncol. 2012 Jun 10; 30(17):2079-86. PMID: 22565004; PMCID: PMC3397695; DOI: 10.1200/JCO.2011.37.0577;

Houtrow AJ, Yock TI, Delahaye J, Kuhlthau K. The family impacts of proton radiation therapy for children with brain tumors. J Pediatr Oncol Nurs. 2012 May-Jun; 29(3):171-9. PMID: 22647729; PMCID: PMC3587352; DOI: 10.1177/1043454212446345;

Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolesc Health. 2012 Sep; 51(3):213-9. PMID: 22921130; DOI: 10.1016/j.jadohealth.2012.01.007;

Kuo DZ, Houtrow AJ, Arango P, Kuhlthau KA, Simmons JM, Neff JM. Family-centered care: current applications and future directions in pediatric health care. Matern Child Health J. 2012 Feb; 16(2):297-305. PMID: 21318293; PMCID: PMC3262132; DOI: 10.1007/s10995-011-0751-7;

Kuhlthau KA, Bhat S, Yeap BY, Yock T et al. HEALTH RELATED QUALITY OF LIFE IN PEDIATRIC BRAIN TUMOR PATIENTS: A COMPARISON OF PROTON AND PHOTON TREATED COHORTS. Pediatric Blood & Cancer. 2012; 59(6):979-979.
Lavelle T, Weinstein MC, Newhouse JP, Kuhlthau KA, Munir K, Prosser LA. The 34th Annual Meeting of the Society for Medical Decision Making. PARENT AND CHILD HEALTH UTILITIES ASSOCIATED WITH AUTISM SPECTRUM DISORDERS. 2012.
Kuhlthau KA. Parent Caregivers of Children with Disabilities. Multiple Dimensions of Caregiving and Disability. 2012; 67-82. View Publication
Kuhlthau KA, Payakachat N, Delahaye J, Pyne J, Kovacs E, Mick J. Measuring quality of life for caregivers of children with Autism Spectrum Disorder for use in cost-effectiveness evaluations: A mixed method approach. Quality of Life Research. 2012; 20:16.

Katz ML, Laffel LM, Perrin JM, Kuhlthau K. Impact of type 1 diabetes mellitus on the family is reduced with the medical home, care coordination, and family-centered care. J Pediatr. 2012 May; 160(5):861-7. PMID: 22133424; PMCID: PMC3328639; DOI: 10.1016/j.jpeds.2011.10.010;

Guzman MP, Jellinek M, George M, Hartley M, Squicciarini AM, Canenguez KM, Kuhlthau KA, Yucel R, White GW, Guzman J, Murphy JM. Mental health matters in elementary school: first-grade screening predicts fourth grade achievement test scores. Eur Child Adolesc Psychiatry. 2011 Aug; 20(8):401-11. PMID: 21647553; DOI: 10.1007/s00787-011-0191-3;

Kuhlthau KA. Measures of availability of health care services for children. Acad Pediatr. 2011 May-Jun; 11(3 Suppl):S42-8. PMID: 21570016; DOI: 10.1016/j.acap.2010.11.007;

Kuhlthau K, Jellinek M, White G, Vancleave J, Simons J, Murphy M. Increases in behavioral health screening in pediatric care for Massachusetts Medicaid patients. Arch Pediatr Adolesc Med. 2011 Jul; 165(7):660-4. PMID: 21383254; PMCID: PMC4727531; DOI: 10.1001/archpediatrics.2011.18;

Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Homer CJ, Newacheck PW, Perrin JM. Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr. 2011 Mar-Apr; 11(2):136-43. PMID: 21396616; DOI: 10.1016/j.acap.2010.12.014;

Szilagyi PG, Kuhlthau KA. Children with special health care needs: a celebration of success! Acad Pediatr. 2011 Mar-Apr; 11(2):94-5. PMID: 21396613; DOI: 10.1016/j.acap.2011.01.002;

Guzman MP, Jellinek MS, George M, Hartley M, Squicciarini AM, Caneguez KM, Kuhlthau KA, Yucel R, White GW, Guzman Pina J, Murphy M. La salud mental es importante en la educación básica: pesquisa en 1º básico predice resultados académicos en SIMCE de 4º básico. 2011.

Lipstein EA, Nabi E, Perrin JM, Luff D, Browning MF, Kuhlthau KA. Parents' decision-making in newborn screening: opinions, choices, and information needs. Pediatrics. 2010 Oct; 126(4):696-704. PMID: 20837593; DOI: 10.1542/peds.2010-0217;

Kuhlthau K, Orlich F, Hall TA, Sikora D, Kovacs EA, Delahaye J, Clemons TE. Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord. 2010 Jun; 40(6):721-9. PMID: 20033762; DOI: 10.1007/s10803-009-0921-2;

Oreskovic NM, Kuhlthau KA, Laraque D, Serwint JR, Schuster MA. Health care reform for children: views from the Academic Pediatric Association. Acad Pediatr. 2010 May-Jun; 10(3):153-4. PMID: 20452563; DOI: 10.1016/j.acap.2010.03.005;

Arauz Boudreau AD, Fluet CF, Reuland CP, Delahaye J, Perrin JM, Kuhlthau K. Associations of providers' language and cultural skills with Latino parents' perceptions of well-child care. Acad Pediatr. 2010 May-Jun; 10(3):172-8. PMID: 20347415; DOI: 10.1016/j.acap.2010.01.002;

Isong IA, Zuckerman KE, Rao SR, Kuhlthau KA, Winickoff JP, Perrin JM. Association between parents' and children's use of oral health services. Pediatrics. 2010 Mar; 125(3):502-8. PMID: 20123775; DOI: 10.1542/peds.2009-1417;

Pulsifer MB, Delgado I, Tarbell N, Kuhlthau KA, Macdonald SM, Yock T. Neurocognitive outcomes after proton radiation for pediatric brain tumors. Journal of Clinical Oncology. 2010; 28(15_suppl):9508. View Publication
Pulsifer M, Delgado I, Tarbell N, Kuhlthau KA, Macdonald SM, Yock T. NEUROBEHAVIORAL FUNCTIONING IN PEDIATRIC BRAIN TUMOR PATIENTS AFTER PROTON BEAM RADIATION TREATMENT. Pediatric Blood & Cancer. 2010; 55(5):807.

Witt WP, Kahn R, Fortuna L, Winickoff J, Kuhlthau K, Pirraglia PA, Ferris T. Psychological distress as a barrier to preventive healthcare among U.S. women. J Prim Prev. 2009 Sep; 30(5):531-47.View Related Profiles.

Kuhlthau, Karen
Fortuna, Lisa

PMID: 19690962; DOI: 10.1007/s10935-009-0190-z;

Cooley WC, McAllister JW, Sherrieb K, Kuhlthau K. Improved outcomes associated with medical home implementation in pediatric primary care. Pediatrics. 2009 Jul; 124(1):358-64. PMID: 19564320; DOI: 10.1542/peds.2008-2600;

Oreskovic NM, Winickoff JP, Kuhlthau KA, Romm D, Perrin JM. Obesity and the built environment among Massachusetts children. Clin Pediatr (Phila). 2009 Nov; 48(9):904-12. PMID: 19487763; DOI: 10.1177/0009922809336073;

Oreskovic NM, Kuhlthau KA, Romm D, Perrin JM. Built environment and weight disparities among children in high- and low-income towns. Acad Pediatr. 2009 Sep-Oct; 9(5):315-21. PMID: 19477705; DOI: 10.1016/j.acap.2009.02.009;

Newacheck PW, Houtrow AJ, Romm DL, Kuhlthau KA, Bloom SR, Van Cleave JM, Perrin JM. The future of health insurance for children with special health care needs. Pediatrics. 2009 May; 123(5):e940-7. PMID: 19403486; DOI: 10.1542/peds.2008-2921;

Wexler T, Gunnell L, Omer Z, Kuhlthau K, Beauregard C, Graham G, Utz AL, Biller B, Nachtigall L, Loeffler J, Swearingen B, Klibanski A, Miller KK. Growth hormone deficiency is associated with decreased quality of life in patients with prior acromegaly. J Clin Endocrinol Metab. 2009 Jul; 94(7):2471-7. PMID: 19366847; PMCID: PMC2708960; DOI: 10.1210/jc.2008-2671;

Zuckerman KE, Boudreau AA, Lipstein EA, Kuhlthau KA, Perrin JM. Household language, parent developmental concerns, and child risk for developmental disorder. Acad Pediatr. 2009 Mar-Apr; 9(2):97-105. PMID: 19329100; DOI: 10.1016/j.acap.2008.12.006;

Lipstein EA, Perrin JM, Kuhlthau KA. School absenteeism, health status, and health care utilization among children with asthma: associations with parental chronic disease. Pediatrics. 2009 Jan; 123(1):e60-6. PMID: 19117848; DOI: 10.1542/peds.2008-1890;

Kuhlthau K, Kahn R, Hill KS, Gnanasekaran S, Ettner SL. The well-being of parental caregivers of children with activity limitations. Matern Child Health J. 2010 Mar; 14(2):155-63. PMID: 19034635; DOI: 10.1007/s10995-008-0434-1;

Gnanasekaran SK, Boudreau AA, Soobader MJ, Yucel R, Hill K, Kuhlthau K. State policy environment and delayed or forgone care among children with special health care needs. Matern Child Health J. 2008 Nov; 12(6):739-46. PMID: 17975719

Homer CJ, Klatka K, Romm D, Kuhlthau K, Bloom S, Newacheck P, Van Cleave J, Perrin JM. A review of the evidence for the medical home for children with special health care needs. Pediatrics. 2008 Oct; 122(4):e922-37. PMID: 18829788; DOI: 10.1542/peds.2007-3762;

Toomey SL, Finkelstein J, Kuhlthau K. Does connection to primary care matter for children with attention-deficit/hyperactivity disorder? Pediatrics. 2008 Aug; 122(2):368-74. PMID: 18676555; DOI: 10.1542/peds.2007-2794;

Tang MH, Hill KS, Boudreau AA, Yucel RM, Perrin JM, Kuhlthau KA. Medicaid managed care and the unmet need for mental health care among children with special health care needs. Health Serv Res. 2008 Jun; 43(3):882-900. PMID: 18454773; PMCID: PMC2442244; DOI: 10.1111/j.1475-6773.2007.00811.x;

Kuhlthau K, Hill K, Fluet C, Meara E, Yucel RM. Correlates of therapy use and expenditures in children in the United States. Dev Neurorehabil. 2008 Apr-Jun; 11(2):115-23. PMID: 17952754

Perrin JM, Kuhlthau K, Chughtai A, Romm D, Kirschner BS, Ferry GD, Cohen SA, Gold BD, Heyman MB, Baldassano RN, Winter HS. Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. J Pediatr Gastroenterol Nutr. 2008 Feb; 46(2):164-71. PMID: 18223375; PMCID: PMC3065353; DOI: 10.1097/MPG.0b013e31812f7f4e;

Fluet C, Turner S, Collamore B, Grossman-Mckee D, Perrin J, Epstein S, Allen D, Anderson B, Wells N, Kuhlthau KA, Honberg L. Three Workplace Models for Children with Special Needs. Journal of Workplace Behavioral Health. 2008; 23(3):245-262. View Publication

Perrin JM, Romm D, Bloom SR, Homer CJ, Kuhlthau KA, Cooley C, Duncan P, Roberts R, Sloyer P, Wells N, Newacheck P. A family-centered, community-based system of services for children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007 Oct; 161(10):933-6. PMID: 17909135

Hill KS, Freeman LC, Yucel RM, Kuhlthau KA. Unmet need among children with special health care needs in Massachusetts. Matern Child Health J. 2008 Sep; 12(5):650-61. PMID: 17899342

Perrin JM, Fluet CF, Honberg L, Anderson B, Wells N, Epstein S, Allen D, Tobias C, Kuhlthau KA. Benefits for employees with children with special needs: findings from the collaborative employee benefit study. Health Aff (Millwood). 2007 Jul-Aug; 26(4):1096-103. PMID: 17630452

Kuhlthau KA, Yock TI, Dezarn J, Tarbell N. Health-related quality of life of pediatric patients on proton treatment for CNS tumors. Pediatric Blood & Cancer. 2007; 48(6):638.

Witt WP, Fortuna L, Wu E, Kahn RS, Winickoff JP, Pirraglia PA, Ferris TG, Kuhlthau K. Children's use of motor vehicle restraints: maternal psychological distress, maternal motor vehicle restraint practices, and sociodemographics. Ambul Pediatr. 2006 May-Jun; 6(3):145-51.View Related Profiles.

Kuhlthau, Karen
Fortuna, Lisa

PMID: 16713932

Ferris TG, Kuhlthau K, Ausiello J, Perrin J, Kahn R. Are minority children the last to benefit from a new technology? Technology diffusion and inhaled corticosteriods for asthma. Med Care. 2006 Jan; 44(1):81-6. PMID: 16365616

Kuhlthau K, Ferris TG, Davis RB, Perrin JM, Iezzoni LI. Pharmacy-and diagnosis-based risk adjustment for children with Medicaid. Med Care. 2005 Nov; 43(11):1155-9. PMID: 16224310

Kuhlthau K, Hill KS, Yucel R, Perrin JM. Financial burden for families of children with special health care needs. Matern Child Health J. 2005 Jun; 9(2):207-18. PMID: 15965627

Blumenthal D, Weissman JS, Wachterman M, Weil E, Stafford RS, Perrin JM, Ferris TG, Kuhlthau K, Kaushal R, Iezzoni LI. The who, what, and why of risk adjustment: a technology on the cusp of adoption. J Health Polit Policy Law. 2005 Jun; 30(3):453-73.View Related Profiles.

Kuhlthau, Karen
Wachterman, Melissa

PMID: 16089112

Perrin JM, Fluet C, Kuhlthau KA, Anderson B, Wells N, Epstein S, Allen D, Tobias C. Benefits for employees with children with ADHD: findings from the Collaborative Employee Benefit Study. J Dev Behav Pediatr. 2005 Feb; 26(1):3-8.View Related Profiles.

Tobias, Carol
Kuhlthau, Karen

PMID: 15718875

Perrin JM, Kuhlthau KA, Chughtai A, Winter HS, Baldassano RN, Cohen SA, Ferry GD, Gold BD, Heymann MB, Kirschner BS. QUALITY OF LIFE AND DISEASE SEVERITY IN PEDIATRIC INFLAMMATORY BOWEL DISEASE: 160. Journal of Pediatric Gastroenterology and Nutrition. 2005; 41(4):542-543. View Publication

Kuhlthau K, Nyman RM, Ferris TG, Beal AC, Perrin JM. Correlates of use of specialty care. Pediatrics. 2004 Mar; 113(3 Pt 1):e249-55. PMID: 14993584

Kuhlthau K, Ferris TG, Iezzoni LI. Risk adjustment for pediatric quality indicators. Pediatrics. 2004 Jan; 113(1 Pt 2):210-6. PMID: 14702503

Beal AC, Kuhlthau K, Perrin JM. Breastfeeding advice given to African American and white women by physicians and WIC counselors. Public Health Rep. 2003 Jul-Aug; 118(4):368-76. PMID: 12815087; PMCID: PMC1497560

Perrin JM, Kuhlthau KA, Gortmaker SL, Beal AC, Ferris TG. Generalist and subspecialist care for children with chronic conditions. Ambul Pediatr. 2002 Nov-Dec; 2(6):462-9. PMID: 12437393

Kuhlthau KA, Beal AC, Ferris TG, Perrin JM. Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambul Pediatr. 2002 Jan-Feb; 2(1):58-62. PMID: 11888439

Kuhlthau KA, Perrin JM. Child health status and parental employment. Arch Pediatr Adolesc Med. 2001 Dec; 155(12):1346-50. PMID: 11732954

Kuhlthau K, Ferris TG, Beal AC, Gortmaker SL, Perrin JM. Who cares for medicaid-enrolled children with chronic conditions? Pediatrics. 2001 Oct; 108(4):906-12. PMID: 11581443

Ferris TG, Kuhlthau K. Why should pediatricians be concerned about risk adjustment? Ambul Pediatr. 2001 Jul-Aug; 1(4):225-6. PMID: 11888405

Cooper WO, Kuhlthau K. Evaluating medicaid managed care programs for children. Ambul Pediatr. 2001 Mar-Apr; 1(2):112-6. PMID: 11888383

Ettner SL, Kuhlthau K, McLaughlin TJ, Perrin JM, Gortmaker SL. Impact of expanding SSI on Medicaid expenditures of disabled children. Health Care Financ Rev. 2000; 21(3):185-201. PMID: 11481755

Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics. 1999 Jun; 103(6 Pt 1):1235-42. PMID: 10353935

Perrin JM, Kuhlthau K, McLaughlin TJ, Ettner SL, Gortmaker SL. Changing patterns of conditions among children receiving Supplemental Security Income disability benefits. Arch Pediatr Adolesc Med. 1999 Jan; 153(1):80-4. PMID: 9895004

Kuhlthau K, Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL. High-expenditure children with Supplemental Security Income. Pediatrics. 1998 Sep; 102(3 Pt 1):610-5. PMID: 9738184

Kuhlthau K, Walker DK, Perrin JM, Bauman L, Gortmaker SL, Newacheck PW, Stein RE. Assessing managed care for children with chronic conditions. Health Aff (Millwood). 1998 Jul-Aug; 17(4):42-52.View Related Profiles.

Walker, Deborah
Kuhlthau, Karen

PMID: 9691549

Perrin JM, Ettner SL, McLaughlin TJ, Gortmaker SL, Bloom SR, Kuhlthau K. State variations in supplemental security income enrollment for children and adolescents. Am J Public Health. 1998 Jun; 88(6):928-31. PMID: 9618622; PMCID: PMC1508231

Perrin JM, Kuhlthau K, Ettner SL, McLaughlin TJ, Gortmaker SL. Previous Medicaid Status of Children Newly Enrolled in Supplemental Security Income. Health Care Financ Rev. 1998; 19(4):117-127. PMID: 25372891; PMCID: PMC4194517

Perrin JM, Kuhlthau K, Walker DK, Stein RE, Newacheck PW, Gortmaker SL. Monitoring health care for children with chronic conditions in a managed care environment. Matern Child Health J. 1997 Mar; 1(1):15-23.View Related Profiles.

Walker, Deborah
Kuhlthau, Karen

PMID: 10728222

Newacheck PW, Stein RE, Walker DK, Gortmaker SL, Kuhlthau K, Perrin JM. Monitoring and evaluating managed care for children with chronic illnesses and disabilities. Pediatrics. 1996 Nov; 98(5):952-8.View Related Profiles.

Walker, Deborah
Kuhlthau, Karen

PMID: 8909492

Howland J, Mangione TW, Kuhlthau K, Bell N, Heeren T, Lee M, Levine S. Work-site variation in managerial drinking. Addiction. 1996 Jul; 91(7):1007-17.View Related Profiles.

Howland, Jonathan
Kuhlthau, Karen
Mangione, Thomas
Heeren, Timothy

PMID: 8688815

Kuhlthau KA, Oppenheim Mason K. Market Child Care Versus Care by Relatives. Journal of Family Issues. 1996; 17(4). View Publication

Mason KO, Kuhlthau K. The perceived impact of child care costs on women's labor supply and fertility. Demography. 1992 Nov; 29(4):523-43. PMID: 1483540

This graph shows the total number of publications by year, by first, middle/unknown, or last author.

Bar chart showing 25 publications over 12 distinct years, with a maximum of 5 publications in 2014

Bar chart showing 25 publications over 12 distinct years, with a maximum of 5 publications in 2014

Year	Publications
1996	1
2005	1
2007	1
2008	1
2010	2
2011	1
2012	4
2013	4
2014	5
2015	3
2016	1
2017	1

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