Mary Khetani

Assistant Professor

University of Illinois at Chicago

Occupational Therapy

Websites

	UIC College of Applied Health Sciences Faculty
	Google Scholar
	ResearchGate

Mary Khetani, ScD, OTR/L is a pediatric occupational therapist and conducts childhood disability research. Dr. Khetani joined the UIC Department of Occupational Therapy in September 2015. She holds an affiliate research appointment at the CanChild Centre for Childhood Disability Research in Canada. Dr. Khetani directs the Children's Participation in Environment Research Lab (CPERL). Dr. Khetani and the CPERL research team contribute to interdisciplinary and multi-site translational research that is relevant to advancing client-centered and participation-focused pediatric (re)habilitation.

Postdoctoral Associate (previously held)
Boston University Medical Campus
Clinical Epidemiology

NIH RePORTER Research

Title

Yr	Title	Project-Sub Proj	Pubs
2017	Early Intervention Outcomes Research using Innovative Patient-Reported Outcome (PRO) Measures	5R03HD084909-02	5
2016	Early Intervention Outcomes Research using Innovative Patient-Reported Outcome (PRO) Measures	1R03HD084909-01A1	5

Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.

iCite Analysis Copy PMIDs To Clipboard

Rizk S, Ngui EM, Salgado Z, Bosak DL, Khetani MA. Medical Home Care and Educational Services for Children and Youth on the Autism Spectrum: A Scoping Review. J Autism Dev Disord. 2024 Feb 28. PMID: 38416384

Kaelin VC, Saluja S, Bosak DL, Anaby D, Werler M, Khetani MA. Caregiver strategies supporting community participation among children and youth with or at risk for disabilities: a mixed-methods study. Front Pediatr. 2024; 12:1345755.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 38425659; PMCID: PMC10902462; DOI: 10.3389/fped.2024.1345755;

Kaelin VC, Boyd AD, Werler MM, Parde N, Khetani MA. Natural Language Processing to Classify Caregiver Strategies Supporting Participation Among Children and Youth with Craniofacial Microsomia and Other Childhood-Onset Disabilities. J Healthc Inform Res. 2023 Dec; 7(4):480-500.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 37927374; PMCID: PMC10620347; DOI: 10.1007/s41666-023-00149-y;

Villegas VC, Bosak DL, Salgado Z, Phoenix M, Parde N, Teplicky R, Khetani MA. Diversified caregiver input to upgrade the Young Children's Participation and Environment Measure for equitable pediatric re/habilitation practice. J Patient Rep Outcomes. 2023 Aug 28; 7(1):87. PMID: 37639038; PMCID: PMC10462549; DOI: 10.1186/s41687-023-00627-2;

McPhee PG, Pozniak K, Khetani MA, Campbell W, Dix L, Phoenix M. Establishing and sustaining authentic organizational partnerships in childhood disability research: lessons learned. Res Involv Engagem. 2023 Jul 20; 9(1):55. PMID: 37474967; PMCID: PMC10360233; DOI: 10.1186/s40900-023-00466-x;

Kaelin VC, Anaby D, Werler MM, Khetani MA. School participation among young people with craniofacial microsomia and other childhood-onset disabilities. Dev Med Child Neurol. 2023 May 03.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 37138446; PMCID: PMC10622330; DOI: 10.1111/dmcn.15628;

Rizk S, Kaelin VC, Sim JGC, Murphy NJ, McManus BM, Leland NE, Stoffel A, James L, Barnekow K, Papautsky EL, Khetani MA. Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention. Appl Clin Inform. 2023 Jan; 14(1):91-107. PMID: 36724883; PMCID: PMC9891850; DOI: 10.1055/s-0042-1760631;

Rizk S, Ngui E, Benevides TW, Moerchen VA, Khetani M, Barnekow K. Is medical home care adequacy associated with educational service use in children and youth with autism spectrum disorder (ASD)? BMC Pediatr. 2023 Jan 09; 23(1):12. PMID: 36617543; PMCID: PMC9827663; DOI: 10.1186/s12887-022-03776-3;

Kaelin V, Villegas V, Chen YF, Murphy N, Papautsky E, Litfin J, Leland N, Maheshwari V, McManus B, Khetani M. Effectiveness and scalability of an electronic patient-reported outcome measure and decision support tool for family-centred and participation-focused early intervention: PROSPECT hybrid type 1 trial protocol. BMJ Open. 2022 01 04; 12(1):e051582. PMID: 34983760; PMCID: PMC8728410; DOI: 10.1136/bmjopen-2021-051582;

Kaelin VC, Valizadeh M, Salgado Z, Sim JG, Anaby D, Boyd AD, Parde N, Khetani MA. Capturing and Operationalizing Participation in Pediatric Re/Habilitation Research Using Artificial Intelligence: A Scoping Review. Front Rehabil Sci. 2022; 3. PMID: 35919375; PMCID: PMC9340801; DOI: 10.3389/fresc.2022.855240;

Showing 10 of 68 results. Show More

Kaelin VC, Valizadeh M, Salgado Z, Parde N, Khetani MA. Artificial Intelligence in Rehabilitation Targeting the Participation of Children and Youth With Disabilities: Scoping Review. J Med Internet Res. 2021 11 04; 23(11):e25745. PMID: 34734833; PMCID: PMC8603165; DOI: 10.2196/25745;

Tomas V, Srinivasan R, Kulkarni V, Teplicky R, Anaby D, Khetani M. A guiding process to culturally adapt assessments for participation-focused pediatric practice: the case of the Participation and Environment Measures (PEM). Disabil Rehabil. 2022 Oct; 44(21):6497-6509. PMID: 34410207

Anaby D, Khetani M, Piskur B, van der Holst M, Bedell G, Schakel F, de Kloet A, Simeonsson R, Imms C. Towards a paradigm shift in pediatric rehabilitation: accelerating the uptake of evidence on participation into routine clinical practice. Disabil Rehabil. 2022 May; 44(9):1746-1757. PMID: 33832391

Kaelin VC, Wallace ER, Werler MM, Collett BR, Rosenberg J, Khetani MA. Caregiver Perspectives on School Participation Among Students With Craniofacial Microsomia. Am J Occup Ther. 2021 Mar-Apr; 75(2):7502205100p1-7502205100p10.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 33657352; PMCID: PMC7929606; DOI: 10.5014/ajot.2021.041277;

Kaelin VC, Bosak DL, Villegas VC, Imms C, Khetani MA. Participation-Focused Strategy Use Among Caregivers of Children Receiving Early Intervention. Am J Occup Ther. 2021 Jan-Feb; 75(1):7501205090p1-7501205090p11. PMID: 33399057; PMCID: PMC7784037; DOI: 10.5014/ajot.2021.041962;

Jarvis JM, Fayed N, Fink EL, Choong K, Khetani MA. Caregiver dissatisfaction with their child's participation in home activities after pediatric critical illness. BMC Pediatr. 2020 09 02; 20(1):415. PMID: 32878614; PMCID: PMC7466418; DOI: 10.1186/s12887-020-02306-3;

Albrecht EC, Kaelin VC, Rigau BL, Dooling-Litfin JK, Scully EA, Murphy NJ, McManus BM, Khetani MA. Pilot implementation of an electronic patient-reported outcome measure for planning and monitoring participation-focused care in early intervention. BMC Med Inform Decis Mak. 2020 08 24; 20(1):199. PMID: 32838772; PMCID: PMC7446047; DOI: 10.1186/s12911-020-01189-9;

Khetani MA, McManus BM, Albrecht EC, Kaelin VC, Dooling-Litfin JK, Scully EA. Early intervention service intensity and young children's home participation. BMC Pediatr. 2020 07 03; 20(1):330. PMID: 32620161; PMCID: PMC7333381; DOI: 10.1186/s12887-020-02182-x;

Kaelin VC, Wallace ER, Werler MM, Collett BR, Khetani MA. Community participation in youth with craniofacial microsomia. Disabil Rehabil. 2022 01; 44(2):253-260.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 32478589; PMCID: PMC7704849; DOI: 10.1080/09638288.2020.1765031;

Jarvis JM, Kaelin VC, Anaby D, Teplicky R, Khetani MA. Electronic participation-focused care planning support for families: a pilot study. Dev Med Child Neurol. 2020 08; 62(8):954-961. PMID: 32259292; PMCID: PMC7332406; DOI: 10.1111/dmcn.14535;

McManus BM, Murphy NJ, Richardson Z, Khetani MA, Schenkman M, Morrato EH. Family-centred care in early intervention: Examining caregiver perceptions of family-centred care and early intervention service use intensity. Child Care Health Dev. 2020 01; 46(1):1-8. PMID: 31782824; PMCID: PMC6949406; DOI: 10.1111/cch.12724;

Richardson ZS, Scully EA, Dooling-Litfin JK, Murphy NJ, Rigau B, Khetani MA, McManus BM. Early Intervention Service Intensity and Change in Children's Functional Capabilities. Arch Phys Med Rehabil. 2020 05; 101(5):815-821. PMID: 31778660; PMCID: PMC7183419; DOI: 10.1016/j.apmr.2019.10.188;

Bosak DL, Jarvis JM, Khetani MA. Caregiver creation of participation-focused care plans using Participation and Environment Measure Plus (PEM+), an electronic health tool for family-centred care. Child Care Health Dev. 2019 11; 45(6):791-798. PMID: 31313843

Jarvis JM, Gurga AR, Lim H, Cameron J, Gorter JW, Choong K, Khetani MA. Caregiver Strategy Use to Promote Children's Home Participation After Pediatric Critical Illness. Arch Phys Med Rehabil. 2019 11; 100(11):2144-2150. PMID: 31278925

Jarvis JM, Gurga A, Greif A, Lim H, Anaby D, Teplicky R, Khetani MA. Usability of the Participation and Environment Measure Plus (PEM+) for Client-Centered and Participation-Focused Care Planning. Am J Occup Ther. 2019 Jul/Aug; 73(4):7304205130p1-7304205130p8. PMID: 31318677; PMCID: PMC9563087; DOI: 10.5014/ajot.2019.032235;

Richardson ZS, Khetani MA, Scully E, Dooling-Litfin J, Murphy NJ, McManus BM. Social and Functional Characteristics of Receipt and Service Use Intensity of Core Early Intervention Services. Acad Pediatr. 2019 Sep - Oct; 19(7):722-732. PMID: 30797897; PMCID: PMC6703972; DOI: 10.1016/j.acap.2019.02.004;

Jarvis JM, Choong K, Khetani MA. Associations of Participation-Focused Strategies and Rehabilitation Service Use With Caregiver Stress After Pediatric Critical Illness. Arch Phys Med Rehabil. 2019 04; 100(4):703-710. PMID: 30578773; PMCID: PMC6435394; DOI: 10.1016/j.apmr.2018.11.017;

Rigau BL, Scully EA, Dooling-Litfin JK, Murphy NJ, McManus BM, Khetani MA. Community engagement to pilot electronic patient-reported outcomes (e-PROs) in early intervention: Lessons learned. J Clin Transl Sci. 2018 Feb; 2(1):20-26. PMID: 30333929; PMCID: PMC6188646; DOI: 10.1017/cts.2018.15;

Khetani MA, Albrecht EC, Jarvis JM, Pogorzelski D, Cheng E, Choong K. Determinants of change in home participation among critically ill children. Dev Med Child Neurol. 2018 08; 60(8):793-800. PMID: 29574916

Khetani MA, McManus BM, Arestad K, Richardson Z, Charlifue-Smith R, Rosenberg C, Rigau B. Technology-based functional assessment in early childhood intervention: a pilot study. Pilot Feasibility Stud. 2018; 4:65. PMID: 29588860; PMCID: PMC5863479; DOI: 10.1186/s40814-018-0260-1;

Choong K, Fraser D, Al-Harbi S, Borham A, Cameron J, Cameron S, Cheng J, Clark H, Doherty T, Fayed N, Gorter JW, Herridge M, Khetani M, Menon K, Seabrook J, Simpson R, Thabane L. Functional Recovery in Critically Ill Children, the "WeeCover" Multicenter Study. Pediatr Crit Care Med. 2018 02; 19(2):145-154. PMID: 29394221

Jarvis JM, Downer B, Baillargeon J, Khetani M, Ottenbacher KJ, Graham JE. The modifying effect of positive emotion on the relationship between cognitive impairment and disability among older Mexican Americans: a cohort study. Disabil Rehabil. 2019 06; 41(13):1491-1498. PMID: 29378460; PMCID: PMC6066465; DOI: 10.1080/09638288.2018.1432080;

Khetani MA., Albrecht E, Jarvis J, Pogorzelski D, Cheng E, Choong, K. Determinants of home participation change among critically ill children following PICU admission. Developmental Medicine and Child Neurology. 2018. View Publication

Khetani MA, Lim HK, Corden ME. Correction: Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study. JMIR Rehabil Assist Technol. 2017 Dec 21; 4(2):e13. PMID: 29267162; PMCID: PMC5739536; DOI: 10.2196/rehab.9580;

Khetani MA, Lim HK, Corden ME. Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study. JMIR Rehabil Assist Technol. 2017 Oct 24; 4(2):e10. PMID: 29066421; PMCID: PMC5676028; DOI: 10.2196/rehab.7566;

Arestad KE, MacPhee D, Lim CY, Khetani MA. Cultural adaptation of a pediatric functional assessment for rehabilitation outcomes research. BMC Health Serv Res. 2017 Sep 15; 17(1):658. PMID: 28915817; PMCID: PMC5603009; DOI: 10.1186/s12913-017-2592-6;

Lim CY, Law M, Khetani M, Rosenbaum P, Pollock N. Psychometric Evaluation of the Young Children's Participation and Environment Measure (YC-PEM) for use in Singapore. Phys Occup Ther Pediatr. 2018 08; 38(3):316-328. PMID: 28872939

Khetani MA, Richardson Z, McManus BM. Social Disparities in Early Intervention Service Use and Provider-Reported Outcomes. J Dev Behav Pediatr. 2017 Sep; 38(7):501-509. PMID: 28723828; PMCID: PMC5573679; DOI: 10.1097/DBP.0000000000000474;

Gill SV, Khetani MA, Yinusa-Nyahkoon L, McManus B, Gardiner PM, Tickle-Degnen L. Forging Alliances in Interdisciplinary Rehabilitation Research (FAIRR): A Logic Model. Am J Phys Med Rehabil. 2017 Jul; 96(7):479-486.View Related Profiles.

Khetani, Mary
Gardiner, Paula
Gill, Simone

PMID: 28628536; PMCID: PMC5477651; DOI: 10.1097/PHM.0000000000000654;

Di Marino E, Tremblay S, Khetani M, Anaby D. The effect of child, family and environmental factors on the participation of young children with disabilities. Disabil Health J. 2018 Jan; 11(1):36-42. PMID: 28624289

Åström FM, Khetani M, Axelsson AK. Young Children's Participation and Environment Measure: Swedish Cultural Adaptation. Phys Occup Ther Pediatr. 2018 08; 38(3):329-342. PMID: 28467126

Albrecht EC, Khetani MA. Environmental impact on young children's participation in home-based activities. Dev Med Child Neurol. 2017 Apr; 59(4):388-394. PMID: 27988938; PMCID: PMC5334138; DOI: 10.1111/dmcn.13360;

Khetani MA. Capturing change: participation trajectories in cerebral palsy during life transitions. Dev Med Child Neurol. 2017 02; 59(2):118-119. PMID: 27591047; DOI: 10.1111/dmcn.13260;

Benjamin TE, Lucas-Thompson RG, Little LM, Davies PL, Khetani MA. Participation in Early Childhood Educational Environments for Young Children with and Without Developmental Disabilities and Delays: A Mixed Methods Study. Phys Occup Ther Pediatr. 2017 Feb; 37(1):87-107. PMID: 26930134; PMCID: PMC5209297; DOI: 10.3109/01942638.2015.1130007;

Lim CY, Law M, Khetani MA, Pollock N, Rosenbaum P. Participation in out-of-home environments for young children with and without developmental needs. OTJR: Occupation, Participation, and Health. 2016; 36(3):112-125.

Lim CY, Law M, Khetani M, Pollock N, Rosenbaum P. Establishing the Cultural Equivalence of the Young Children's Participation and Environment Measure (YC-PEM) for Use in Singapore. Phys Occup Ther Pediatr. 2016 Nov; 36(4):422-39. PMID: 26642891; PMCID: PMC5176101; DOI: 10.3109/01942638.2015.1101044;

Anaby D, Law M, Coster W, Bedell G, Khetani M, Avery L, Teplicky R. The role of the environment in explaining participation in the home, school and community: Results of a structural equation modelling. Int J Dev Neurosci. 2015 Dec; 47(Pt A):53-4. PMID: 26531471; DOI: 10.1016/j.ijdevneu.2015.04.150;

Choong K, Al-Harbi S, Siu K, Wong K, Cheng J, Baird B, Pogorzelski D, Timmons B, Gorter JW, Thabane L, Khetani M. Functional recovery following critical illness in children: the "wee-cover" pilot study. Pediatr Crit Care Med. 2015 May; 16(4):310-8. PMID: 25651047; PMCID: PMC4499478; DOI: 10.1097/PCC.0000000000000362;

Khetani MA. Validation of environmental content in the Young Children's Participation and Environment Measure. Arch Phys Med Rehabil. 2015 Feb; 96(2):317-22. PMID: 25486608; PMCID: PMC4306606; DOI: 10.1016/j.apmr.2014.11.016;

Khetani MA, Graham JE, Davies PL, Law MC, Simeonsson RJ. Psychometric properties of the Young Children's Participation and Environment Measure. Arch Phys Med Rehabil. 2015 Feb; 96(2):307-16. PMID: 25449189; PMCID: PMC4306635; DOI: 10.1016/j.apmr.2014.09.031;

Khetani MA, Cliff AB, Schelly C, Daunhauer L, Anaby D. Decisional Support Algorithm for Collaborative Care Planning using the Participation and Environment Measure for Children and Youth (PEM-CY): A Mixed Methods Study. Phys Occup Ther Pediatr. 2014 Mar 26. PMID: 24670061

Anaby D, Law M, Coster W, Bedell G, Khetani M, Avery L, Teplicky R. The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school, and community. Arch Phys Med Rehabil. 2014 May; 95(5):908-17. PMID: 24468018; DOI: 10.1016/j.apmr.2014.01.005;

Daunhauer L, Gerlach-McDonald B, Khetani MA. Rules of “engagement”: Addressing participation and functional performance in children with intellectual and developmental disabilities. International Review of Research in Developmental Disabilities. 2014; 47:151-184. View Publication

Khetani M, Marley J, Baker M, Albrecht E, Bedell G, Coster W, Anaby D, Law M. Validity of the Participation and Environment Measure for Children and Youth (PEM-CY) for Health Impact Assessment (HIA) in sustainable development projects. Disabil Health J. 2014 Apr; 7(2):226-35. PMID: 24680052; DOI: 10.1016/j.dhjo.2013.11.003;

Khetani MA, Collett BR, Speltz ML, Werler MM. Health-related quality of life in children with hemifacial microsomia: parent and child perspectives. J Dev Behav Pediatr. 2013 Nov-Dec; 34(9):661-8.View Related Profiles.

Werler, Martha
Khetani, Mary

PMID: 24213374; PMCID: PMC4218728; DOI: 10.1097/DBP.0000000000000006;

Coster W, Law M, Bedell G, Liljenquist K, Kao YC, Khetani M, Teplicky R. School participation, supports and barriers of students with and without disabilities. Child Care Health Dev. 2013 Jul; 39(4):535-43. PMID: 23763254; DOI: 10.1111/cch.12046;

Khetani M, Graham JE, Alvord C. Community participation patterns among preschool-aged children who have received Part C early intervention services. Child Care Health Dev. 2013 Jul; 39(4):490-9. PMID: 23763250; PMCID: PMC5502482; DOI: 10.1111/cch.12045;

Khetani MA, Graham J, Alvord C. Community participation patterns among preschool-aged children who have received Part C early intervention services. Child: Care, Health and Development (Special Issue). 2013; 7(2):226-235.
Khetani MA, Cohn E, Orsmond G, Law M, Coster W. Parent perspectives of participation in home and community life when receiving Part C early intervention services. Topics in Early Childhood Special Education. 2013; 32:234-245.
Khetani MS, Coster WJ. Willard and Spackman’s Occupational Therapy (Schell, Gillen, Scaffa, Eds.). Social participation. Lippincott, Williams and Wilkins. 2013; (731-744).

Bedell G, Coster W, Law M, Liljenquist K, Kao YC, Teplicky R, Anaby D, Khetani MA. Community participation, supports, and barriers of school-age children with and without disabilities. Arch Phys Med Rehabil. 2013 Feb; 94(2):315-23.View Related Profiles.

Khetani, Mary
Kao, Ying-Chia

PMID: 23044364; DOI: 10.1016/j.apmr.2012.09.024;

Khetani MS, Bedell GM, Coster WJ, Cousins M, Law M. Clinical and Research Measures for Children with Developmental Disabilities (Majnemer, Ed.). Physical, social, and attitudinal environment. Mac Keith Press. 2012.
Bedell GM, Khetani MA, Coster WJ, Cousins M, Law M. Clinical and Research Measures for Children with Developmental Disabilities (Majnemer Ed.). Community, social, and civic life. Mac Keith Press. 2012; 416-432.
Khetani MA., Orsmond G, Cohn E, Law M, Coster W. Correlates of community participation among families transitioning from Part C early intervention services. OTJR: Occupation, Participation, and Health. 2012; 32(3):61-72.

Coster W, Law M, Bedell G, Khetani M, Cousins M, Teplicky R. Development of the participation and environment measure for children and youth: conceptual basis. Disabil Rehabil. 2012; 34(3):238-46. PMID: 21981404; DOI: 10.3109/09638288.2011.603017;

Coster W, Bedell G, Law M, Khetani MA, Teplicky R, Liljenquist K, Gleason K, Kao YC. Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Dev Med Child Neurol. 2011 Nov; 53(11):1030-7.View Related Profiles.

Khetani, Mary
Kao, Ying-Chia

PMID: 22014322; DOI: 10.1111/j.1469-8749.2011.04094.x;

Bedell GM, Khetani MA, Cousins MA, Coster WJ, Law MC. Parent perspectives to inform development of measures of children's participation and environment. Arch Phys Med Rehabil. 2011 May; 92(5):765-73. PMID: 21530724; DOI: 10.1016/j.apmr.2010.12.029;

Coster W, Khetani MA. Measuring participation of children with disabilities: issues and challenges. Disabil Rehabil. 2008; 30(8):639-48. PMID: 17852316

This graph shows the total number of publications by year, by first, middle/unknown, or last author.

Bar chart showing 68 publications over 15 distinct years, with a maximum of 8 publications in 2017

Bar chart showing 68 publications over 15 distinct years, with a maximum of 8 publications in 2017

Year	Publications
2008	1
2011	2
2012	5
2013	7
2014	5
2015	3
2016	4
2017	8
2018	7
2019	6
2020	5
2021	5
2022	2
2023	6
2024	2

2017 American Occupational Therapy Association: Service Commendation

2017-2019 National Institutes of Health (NIH/NICHD): Pediatric Loan Repayment Renewal Award

2015-2017 National Institutes of Health (NIH/NICHD): Pediatric Loan Repayment Award

In addition to these self-described keywords below, a list of MeSH based concepts is available here.

Participation Among People with Disabilities
Rehabilitation
Children, Youth and Families

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