Eric Rubenstein, PhD, ScM is an Assistant Professor of Epidemiology at the Boston University School of Public Health. His work is focused on improving the lives of individuals with intellectual and developmental disabilities (IDD), including Down syndrome (DS) and autism spectrum disorder (ASD). Epidemiology, the science of public health, is the crucial tool that can help reach the ultimate goal of improving health and well-being for the population with IDD. That work cannot be done without input and collaboration from the IDD community, which motivates and drives the work to be impactful and translatable.
Dr. Rubenstein's work covers issues that impact health and well-being across the life course for people with IDD. He is currently the PI of a National Institute for Child Health and Human Development study of pregnancy in women with IDD. He has extensive work examining phenotype and service type in children on the autism spectrum. Dr. Rubenstein uses Medicaid data to examine service use and health outcomes for people with IDD who are often served by the public insurance system.
Diversity, Equity, Inclusion and Accessibility
Dr. Rubenstein has incorporated DEIJ initiatives into his research and teaching practice. Dr. Rubenstein co-leads research and services projects with local community organizations that serve individuals with developmental disabilities. Through a BUSPH practice innovation award, Dr. Rubenstein and Special Olympics Massachusetts have utilized MPH Practicum students to create data systems for Special Olympics Massachusetts and create a curriculum and train adults with intellectual disability in being part of a research team. After the training, a participant has joined Dr. Rubenstein’s lab and contributes as a co-author and advisor surrounding Down Syndrome related topics. Dr. Rubenstein has also partnered with LuMIND IDSC, a non-profit organization that promotes Down Syndrome research, to develop and implement a survey for caregivers of adults with Down Syndrome.
In general, Dr. Rubenstein’s work focus on improving the health and well-being surrounding a marginalized group, those with intellectual and developmental disabilities. His work focuses on documenting and improving pregnancy outcomes, identifying the intersection of childhood disability and homelessness, and health and health service use in the Medicaid system. As part of these studies, Dr. Rubenstein incorporates stakeholder feedback through community advisory boards, ensuring research is for the population rather than on it.
In teaching and advising, Dr. Rubenstein aims to ensure DEIJ through increasing accessibility in the classroom and ensuring appropriate compensation for student’s in his lab. Dr. Rubenstein is proactive in taking trainings and keeping up with the latest technology to provide an inclusive lab and classroom.
Improving pregnancy outcomes for women with intellectual and developmental disabilities in Medicaid
04/01/2023 - 01/31/2028 (PI)NIH/National Institute of Child Health & Human Development1R01HD109135-01A1
Down Syndrome: Toward Optimal Trajectories and Health Equity using Medicaid Analytic eXtract (DS-TO-THE-MAX)
09/30/2021 - 08/31/2024 (PI)NIH/National Institute on Aging
Pregnancy rates, risk factors, and child and mother outcomes for women with intellectual and developmental disabilities in Wisconsin
09/01/2020 - 08/31/2022 (PI)NIH/National Institute of Child Health & Human Development7R03HD099619-02
Publications listed below are automatically derived from MEDLINE/PubMed and other
sources, which might result in incorrect or missing publications. Faculty can
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Showing 10 of 40 results.
Furnier SM, Ellis Weismer S, Rubenstein E, Gangnon R, Rosenberg S, Nadler C, Wiggins LD, Durkin MS. Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development. Autism. 2023 Aug 23; 13623613231193194. PMID: 37609907
Rubenstein E, Kyprianou N, Kumar PS, Kriova AM, Sokoloff A, Hillerstrom H, Hendrix J. Healthcare and Behavior Changes for Adults With Down Syndrome 1-Year Into COVID-19. Am J Intellect Dev Disabil. 2023 Jul 01; 128(4):273-281. PMID: 37470258; PMCID: PMC10512186; DOI: 10.1352/1944-7558-128.4.273;
Kirova AM, Jakab T, Bartsch G, Corazzini S, Sokoloff A, Delahunty E, Seymour R, Rubenstein E. Developing and implementing a public health co-research program for Special Olympics athletes. Res Involv Engagem. 2023 Jun 19; 9(1):44. PMID: 37337242; PMCID: PMC10278300; DOI: 10.1186/s40900-023-00450-5;
De La Garza E, Scott A, Hillerstrom H, Hendrix J, Rubenstein E. Caregivers' concerns and supports needed to care for adults with Down syndrome. Am J Med Genet C Semin Med Genet. 2023 Apr 18. PMID: 37072379; PMCID: PMC10583264; DOI: 10.1002/ajmg.c.32041;
Kyprianou N, Hendrix J, Hillerstrom H, Grimm R, Kirova AM, Rubenstein E. Caregivers' perception of adults with Down syndrome willingness to participate in research. J Intellect Disabil Res. 2023 Apr; 67(4):352-361. PMID: 36543755
Rubenstein E, Ehrenthal DB, Nobles J, Mallinson DC, Bishop L, Jenkins MC, Kuo HH, Durkin MS. Fertility rates in women with intellectual and developmental disabilities in Wisconsin Medicaid. Disabil Health J. 2022 Jul; 15(3):101321. PMID: 35430181; PMCID: PMC9308650; DOI: 10.1016/j.dhjo.2022.101321;
Rubenstein E, Bock E, Brochu P, Byrne T. Quantifying the intersection of disability and homelessness in Massachusetts public schools in 2018-2019. Child Care Health Dev. 2022 07; 48(4):569-577. PMID: 35018667
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