Eric Rubenstein, PhD, ScM is an Assistant Professor of Epidemiology at the Boston University School of Public Health. His work is focused on improving the lives of individuals with intellectual and developmental disabilities (IDD), including Down syndrome (DS) and autism spectrum disorder (ASD). Epidemiology, the science of public health, is the crucial tool that can help reach the ultimate goal of improving health and well-being for the population with IDD. That work cannot be done without input and collaboration from the IDD community, which motivates and drives the work to be impactful and translatable.
Dr. Rubenstein's work covers issues that impact health and well-being across the life course for people with IDD. He is currently the PI of a National Institute for Child Health and Human Development study of pregnancy in women with IDD. He has extensive work examining phenotype and service type in children on the autism spectrum. Dr. Rubenstein uses Medicaid data to examine service use and health outcomes for people with IDD who are often served by the public insurance system.
Diversity, Equity, Inclusion and Accessibility
Dr. Rubenstein has incorporated DEIJ initiatives into his research and teaching practice. Dr. Rubenstein co-leads research and services projects with local community organizations that serve individuals with developmental disabilities. Through a BUSPH practice innovation award, Dr. Rubenstein and Special Olympics Massachusetts have utilized MPH Practicum students to create data systems for Special Olympics Massachusetts and create a curriculum and train adults with intellectual disability in being part of a research team. After the training, a participant has joined Dr. Rubenstein’s lab and contributes as a co-author and advisor surrounding Down Syndrome related topics. Dr. Rubenstein has also partnered with LuMIND IDSC, a non-profit organization that promotes Down Syndrome research, to develop and implement a survey for caregivers of adults with Down Syndrome.
In general, Dr. Rubenstein’s work focus on improving the health and well-being surrounding a marginalized group, those with intellectual and developmental disabilities. His work focuses on documenting and improving pregnancy outcomes, identifying the intersection of childhood disability and homelessness, and health and health service use in the Medicaid system. As part of these studies, Dr. Rubenstein incorporates stakeholder feedback through community advisory boards, ensuring research is for the population rather than on it.
In teaching and advising, Dr. Rubenstein aims to ensure DEIJ through increasing accessibility in the classroom and ensuring appropriate compensation for student’s in his lab. Dr. Rubenstein is proactive in taking trainings and keeping up with the latest technology to provide an inclusive lab and classroom.
This tab shows grant data from BMC Sponsored Research. It includes:
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- Data is sorted by project end date, and updated monthly.
This tab shows grant data from BU Sponsored Research. It includes:
- Grant title
- Project period and this person’s role on the grant
- PI name, if this person is not the PI (the name will link if PI has a BU Profile)
- Funding source(s). An arrow indicates the flow of funding if multiple sponsors.
- Some grants will show an agency award/project number, and may be a link.
- Data is sorted by project end date, and updated monthly.
This tab shows grant data that did not automatically get imported into Profiles
from BU or BMC sources.
- Grant title
- Project period and this person’s role on the grant
- PI name, if this person is not the PI (the name will link if PI has a BU Profile)
- Funding source(s). An arrow indicates the flow of funding if multiple sponsors.
- Some grants will show an agency award/project number, and may be a link.
- Data is sorted by project end date, and updated monthly.
This tab shows grant data from the Boston VA. We are only showing grant title, and only for people in the role of PI.
Improving pregnancy outcomes for women with intellectual and developmental disabilities in Medicaid04/01/2023 - 01/31/2028 (PI)
NIH/National Institute of Child Health & Human Development5R01HD109135-02
Down Syndrome: Toward Optimal Trajectories and Health Equity using Medicaid Analytic eXtract (DS-TO-THE-MAX)09/30/2021 - 08/31/2024 (PI)
NIH/National Institute on Aging1R01AG073179-01
Pregnancy rates, risk factors, and child and mother outcomes for women with intellectual and developmental disabilities in Wisconsin09/01/2020 - 08/31/2022 (PI)
NIH/National Institute of Child Health & Human Development7R03HD099619-02
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Publications listed below are automatically derived from MEDLINE/PubMed and other
sources, which might result in incorrect or missing publications. Faculty can
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Scott A, Gould R, Quidore L, Koeut-Futch K, Bock E, Kumar PS, Christensen S, Edouard A, Golden B, Rapp E, Sigelko K, Sokoloff A, Versfelt C, Rubenstein E. Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study. J Appl Res Intellect Disabil. 2025 Jan; 38(1):e13311.View Related Profiles. PMID: 39448390
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Tewolde S, Scott A, Higgins A, Blake J, Michals A, Fox MP, Tripodis Y, Rubenstein E. Doubly marginalized: the interplay of racism and disability in outcomes for minoritized people with Down syndrome. Epidemiology. 2024 Sep 24.View Related Profiles. PMID: 39316830
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Levine AA, Cole MB, Michals AL, Wang N, Rubenstein E. Inequities in medicaid home- and community-based services waiver enrollment among people with intellectual and/or developmental disabilities: A nationwide claims-based analysis. Disabil Health J. 2024 Aug 02; 101676.View Related Profiles. PMID: 39097466; DOI: 10.1016/j.dhjo.2024.101676;
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Rubenstein E, Toth M, Tewolde S. Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions. J Autism Dev Disord. 2024 Jul 24. PMID: 39046684
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Rubenstein E, Tewolde S, Skotko BG, Michals A, Fortea J. Occurrence of mosaic Down syndrome and prevalence of co-occurring conditions in Medicaid enrolled adults, 2016-2019. Am J Med Genet C Semin Med Genet. 2024 Jun 25; e32097. PMID: 38925597
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Van Dyke J, Rosenberg SA, Crume T, Reyes N, Alexander AA, Barger B, Fitzgerald R, Hightshoe K, Moody EJ, Pazol K, Rosenberg CR, Rubenstein E, Wiggins L, DiGuiseppi C. Child Age at Time of First Maternal Concern and Time to Services Among Children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2024 Jul-Aug 01; 45(4):e293-e301. PMID: 38896561; PMCID: PMC11326974; DOI: 10.1097/DBP.0000000000001283;
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Furnier SM, Gangnon R, Daniels JL, Ellis Weismer S, Nadler C, Pazol K, Reyes NM, Rosenberg S, Rubenstein E, Wiggins LD, Yeargin-Allsopp M, Durkin MS. Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning. Autism Res. 2024 Mar; 17(3):650-667. PMID: 38415400; PMCID: PMC11151777; DOI: 10.1002/aur.3107;
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Rubenstein E, Tewolde S, Levine AA, Droscha L, Meyer RM, Michals A, Skotko B. Medicare, Medicaid, and dual enrollment for adults with intellectual and developmental disabilities. Health Serv Res. 2024 Jun; 59(3):e14287. PMID: 38264862; PMCID: PMC11063084; DOI: 10.1111/1475-6773.14287;
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Furnier SM, Ellis Weismer S, Rubenstein E, Gangnon R, Rosenberg S, Nadler C, Wiggins LD, Durkin MS. Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development. Autism. 2024 May; 28(5):1135-1149. PMID: 37609907; PMCID: PMC10884350; DOI: 10.1177/13623613231193194;
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Rubenstein E, Kyprianou N, Kumar PS, Kriova AM, Sokoloff A, Hillerstrom H, Hendrix J. Healthcare and Behavior Changes for Adults With Down Syndrome 1-Year Into COVID-19. Am J Intellect Dev Disabil. 2023 Jul 01; 128(4):273-281. PMID: 37470258; PMCID: PMC10512186; DOI: 10.1352/1944-7558-128.4.273;
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Kirova AM, Jakab T, Bartsch G, Corazzini S, Sokoloff A, Delahunty E, Seymour R, Rubenstein E. Developing and implementing a public health co-research program for Special Olympics athletes. Res Involv Engagem. 2023 Jun 19; 9(1):44. PMID: 37337242; PMCID: PMC10278300; DOI: 10.1186/s40900-023-00450-5;
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De La Garza E, Scott A, Hillerstrom H, Hendrix J, Rubenstein E. Caregivers' concerns and supports needed to care for adults with Down syndrome. Am J Med Genet C Semin Med Genet. 2024 Mar; 196(1):e32041. PMID: 37072379; PMCID: PMC10583264; DOI: 10.1002/ajmg.c.32041;
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Bock E, Brochu P, Rubenstein E. Homelessness and Disability in Public-School Students. Pediatrics. 2023 Apr 01; 151(4). PMID: 36974607
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Kyprianou N, Hendrix J, Hillerstrom H, Grimm R, Kirova AM, Rubenstein E. Caregivers' perception of adults with Down syndrome willingness to participate in research. J Intellect Disabil Res. 2023 Apr; 67(4):352-361. PMID: 36543755; PMCID: PMC11079918; DOI: 10.1111/jir.12999;
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Rubenstein E, Ehrenthal DB, Nobles J, Mallinson DC, Bishop L, Jenkins MC, Kuo HH, Durkin MS. Fertility rates in women with intellectual and developmental disabilities in Wisconsin Medicaid. Disabil Health J. 2022 Jul; 15(3):101321. PMID: 35430181; PMCID: PMC9308650; DOI: 10.1016/j.dhjo.2022.101321;
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Rubenstein E, Bock E, Brochu P, Byrne T. Quantifying the intersection of disability and homelessness in Massachusetts public schools in 2018-2019. Child Care Health Dev. 2022 07; 48(4):569-577. PMID: 35018667
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Ransohoff JI, Sujin Kumar P, Flynn D, Rubenstein E. Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review. J Appl Res Intellect Disabil. 2022 May; 35(3):655-674.View Related Profiles. PMID: 35064736; PMCID: PMC10119781; DOI: 10.1111/jar.12977;
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Wiggins LD, Tian LH, Rubenstein E, Schieve L, Daniels J, Pazol K, DiGuiseppi C, Barger B, Moody E, Rosenberg S, Bradley C, Hsu M, Robinson Rosenberg C, Christensen D, Crume T, Pandey J, Levy SE. Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case-control analysis replicated across two independent samples. Autism Res. 2022 Mar; 15(3):539-550. PMID: 34967132; PMCID: PMC9048225; DOI: 10.1002/aur.2663;
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Rubenstein E, Rice C, Hollingue C, Tsai PC, Stewart L, Daniele Fallin M. Remembering Dr Li-Ching Lee, a pioneer of global autism research. Autism. 2022 02; 26(2):562-563. PMID: 34866424
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Rubenstein E, Furnier S. #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online. Autism Adulthood. 2021 Jun 01; 3(2):120-128. PMID: 34169230; PMCID: PMC8216139; DOI: 10.1089/aut.2020.0031;
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Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin MS. Birth outcomes affecting infants of mothers with intellectual and developmental disabilities. Paediatr Perinat Epidemiol. 2021 11; 35(6):706-716. PMID: 33956997; PMCID: PMC8545714; DOI: 10.1111/ppe.12765;
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Wiggins LD, Rubenstein E, Windham G, Barger B, Croen L, Dowling N, Giarelli E, Levy S, Moody E, Soke G, Fields V, Schieve L. Evaluation of sex differences in preschool children with and without autism spectrum disorder enrolled in the study to explore early development. Res Dev Disabil. 2021 May; 112:103897. PMID: 33610079; PMCID: PMC8215620; DOI: 10.1016/j.ridd.2021.103897;
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Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin M. Pregnancy complications and maternal birth outcomes in women with intellectual and developmental disabilities in Wisconsin Medicaid. PLoS One. 2020; 15(10):e0241298. PMID: 33108397; PMCID: PMC7591078; DOI: 10.1371/journal.pone.0241298;
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Rubenstein E, Kalkbrenner A, Volk H, McGuinn L. Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020). J Autism Dev Disord. 2021 05; 51(5):1808-1809. PMID: 33089445; PMCID: PMC7577358; DOI: 10.1007/s10803-020-04762-3;
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Ellis Weismer S, Rubenstein E, Wiggins L, Durkin MS. A Preliminary Epidemiologic Study of Social (Pragmatic) Communication Disorder Relative to Autism Spectrum Disorder and Developmental Disability Without Social Communication Deficits. J Autism Dev Disord. 2021 Aug; 51(8):2686-2696. PMID: 33037562; PMCID: PMC8032796; DOI: 10.1007/s10803-020-04737-4;
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Bishop L, McLean KJ, Rubenstein E. Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system. Autism. 2021 04; 25(3):831-839. PMID: 32757616; PMCID: PMC7862416; DOI: 10.1177/1362361320942982;
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Rubenstein E, DuBois L, Sadowsky M, Washburn K, Forquer M, Stanish H, Shriver T. Evaluating the potential of Special Olympics fitness models as a health intervention for adults with intellectual disabilities. Disabil Health J. 2020 04; 13(2):100850. PMID: 31704231
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Rubenstein E, Bishop L. Is the Autism Boom Headed for Medicaid? Patterns in the Enrollment of Autistic Adults in Wisconsin Medicaid, 2008-2018. Autism Res. 2019 10; 12(10):1541-1550. PMID: 31317639; PMCID: PMC7006836; DOI: 10.1002/aur.2173;
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Rubenstein E, Croen L, Lee LC, Moody E, Schieve LA, Soke GN, Thomas K, Wiggins L, Daniels J. Community-based service use in preschool children with autism spectrum disorder and associations with insurance status. Res Autism Spectr Disord. 2019 Oct; 66. PMID: 32831903; PMCID: PMC7430759; DOI: 10.1016/j.rasd.2019.101410;
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Wiggins LD, Rubenstein E, Daniels J, DiGuiseppi C, Yeargin-Allsopp M, Schieve LA, Tian LH, Sabourin K, Moody E, Pinto-Martin J, Reyes N, Levy SE. A Phenotype of Childhood Autism Is Associated with Preexisting Maternal Anxiety and Depression. J Abnorm Child Psychol. 2019 04; 47(4):731-740. PMID: 30128718; PMCID: PMC6384146; DOI: 10.1007/s10802-018-0469-8;
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Bishop-Fitzpatrick L, Rubenstein E. The Physical and Mental Health of Middle Aged and Older Adults on the Autism Spectrum and the Impact of Intellectual Disability. Res Autism Spectr Disord. 2019 Jul; 63:34-41. PMID: 31768189; PMCID: PMC6876625; DOI: 10.1016/j.rasd.2019.01.001;
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Rubenstein E, Young JC, Croen LA, DiGuiseppi C, Dowling NF, Lee LC, Schieve L, Wiggins LD, Daniels J. Correction to: Brief Report: Maternal Opioid Prescription from Preconception Through Pregnancy and the Odds of Autism Spectrum Disorder and Autism Features in Children. J Autism Dev Disord. 2019 Jan; 49(1):383-384. PMID: 30238179
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Rubenstein E, Young JC, Croen LA, DiGuiseppi C, Dowling NF, Lee LC, Schieve L, Wiggins LD, Daniels J. Brief Report: Maternal Opioid Prescription from Preconception Through Pregnancy and the Odds of Autism Spectrum Disorder and Autism Features in Children. J Autism Dev Disord. 2019 Jan; 49(1):376-382. PMID: 30132098; PMCID: PMC6331251; DOI: 10.1007/s10803-018-3721-8;
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Levy SE, Pinto-Martin JA, Bradley CB, Chittams J, Johnson SL, Pandey J, Pomykacz A, Ramirez A, Reynolds A, Rubenstein E, Schieve LA, Shapira SK, Thompson A, Young L, Kral TVE. Relationship of Weight Outcomes, Co-Occurring Conditions, and Severity of Autism Spectrum Disorder in the Study to Explore Early Development. J Pediatr. 2019 02; 205:202-209. PMID: 30314662; PMCID: PMC6348122; DOI: 10.1016/j.jpeds.2018.09.003;
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Rubenstein E, Durkin MS, Harrington RA, Kirby RS, Schieve LA, Daniels J. Relationship Between Advanced Maternal Age and Timing of First Developmental Evaluation in Children with Autism. J Dev Behav Pediatr. 2018 Oct/Nov; 39(8):601-609. PMID: 30004996; PMCID: PMC6195454; DOI: 10.1097/DBP.0000000000000601;
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Rubenstein E, Schieve L, Wiggins L, Rice C, Van Naarden Braun K, Christensen D, Durkin M, Daniels J, Lee LC. Trends in documented co-occurring conditions in children with autism spectrum disorder, 2002-2010. Res Dev Disabil. 2018 Dec; 83:168-178. PMID: 30227350; PMCID: PMC6741291; DOI: 10.1016/j.ridd.2018.08.015;
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Rubenstein E, Bishop-Fitzpatrick L. A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder. Autism Res. 2019 01; 12(1):20-25. PMID: 30184325; PMCID: PMC6325000; DOI: 10.1002/aur.2010;
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Rubenstein E, Chawla D. Broader autism phenotype in parents of children with autism: a systematic review of percentage estimates. J Child Fam Stud. 2018 Jun; 27(6):1705-1720. PMID: 29731598; PMCID: PMC5933863; DOI: 10.1007/s10826-018-1026-3;
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Rubenstein E, Wiggins LD, Schieve LA, Bradley C, DiGuiseppi C, Moody E, Pandey J, Pretzel RE, Howard AG, Olshan AF, Pence BW, Daniels J. Associations between parental broader autism phenotype and child autism spectrum disorder phenotype in the Study to Explore Early Development. Autism. 2019 02; 23(2):436-448. PMID: 29376397; PMCID: PMC6027594; DOI: 10.1177/1362361317753563;
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Rubenstein E, Daniels J, Schieve LA, Christensen DL, Van Naarden Braun K, Rice CE, Bakian AV, Durkin MS, Rosenberg SA, Kirby RS, Lee LC. Trends in Special Education Eligibility Among Children With Autism Spectrum Disorder, 2002-2010. Public Health Rep. 2018 Jan/Feb; 133(1):85-92. PMID: 29257937; PMCID: PMC5805094; DOI: 10.1177/0033354917739582;
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Rubenstein E, Schieve L, Bradley C, DiGuiseppi C, Moody E, Thomas K, Daniels J. The prevalence of gluten free diet use among preschool children with autism spectrum disorder. Autism Res. 2018 01; 11(1):185-193. PMID: 29155492; PMCID: PMC5773346; DOI: 10.1002/aur.1896;
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Rubenstein E, Edmondson Pretzel R, Windham GC, Schieve LA, Wiggins LD, DiGuiseppi C, Olshan AF, Howard AG, Pence BW, Young L, Daniels J. The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder. J Autism Dev Disord. 2017 Oct; 47(10):3253-3266. PMID: 28748335; PMCID: PMC5728366; DOI: 10.1007/s10803-017-3248-4;
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Blake JM, Rubenstein E, Tsai PC, Rahman H, Rieth SR, Ali H, Lee LC. Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh. Autism. 2017 07; 21(5):611-621. PMID: 28366007
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Rubenstein E, Wiggins LD, Lee LC. A Review of the Differences in Developmental, Psychiatric, and Medical Endophenotypes Between Males and Females with Autism Spectrum Disorder. J Dev Phys Disabil. 2015 Feb; 27(1):119-139. PMID: 26146472; PMCID: PMC4490156; DOI: 10.1007/s10882-014-9397-x;
This graph shows the total number of publications by year, by first, middle/unknown,
or last author.
| Year | Publications |
|---|
| 2015 | 1 |
| 2017 | 4 |
| 2018 | 6 |
| 2019 | 7 |
| 2020 | 5 |
| 2021 | 6 |
| 2022 | 5 |
| 2023 | 7 |
| 2024 | 8 |