Amy Sobota, MD
Associate Professor
Boston University Chobanian & Avedisian School of Medicine

MD, University of Wisconsin Madison
MPH, Harvard School of Public Health
BA, Harvard College
BA, Radcliffe College

Boston University
Center of Excellence in Sickle Cell Disease

Engaging Parents of Children with Sickle Cell Anemia and their Providers in Shared-Decision…
03/01/2019 - 02/28/2021 (PI)
Children’s Hospital Medical Center - Cincinnati Patient-Centered Out

Development of Problem Solving Intervention to Improve Self-Management and Transition Readiness…
01/01/2017 - 12/31/2020 (PI)
National Institutes of Health/DHHS/NIH National Heart, Lung

Improving the Transition from Pediatrics to Adult Care for Patients with Sickle Cell Disease.
07/01/2016 - 06/30/2019 (PI)
American Society of Hematology

Clinical Hematology Research Career Development Award: K 12 Harvard Blood Scholars
10/01/2013 - 09/30/2015 (PI)
Children's Hospital NIH-NHLBI


Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.

iCite Analysis       Copy PMIDs To Clipboard

  1. Lo ZC, Sobota AE. Maintenance of a High Influenza Vaccination Rate and Improvement in Health Outcomes in a Pediatric Sickle Cell Disease Clinic. J Pediatr Hematol Oncol. 2022 01 01; 44(1):e46-e50. PMID: 33974583; PMCID: PMC8581069; DOI: 10.1097/MPH.0000000000002192;
  2. Slingerland AL, Karsten MB, Smith ER, Sobota AE, See AP. Two Sides of a Coin: Case Report of Unilateral Synangiosis and Contralateral Stroke Highlighting Consequences of Disease Progression and Efficacy of Revascularization in Sickle Cell Disease-Associated Moyamoya Syndrome. Acta Haematol. 2022; 145(4):458-464. PMID: 34879377
  3. Oberoi AR, Patterson A, Sobota A. Measuring transition readiness in adolescents and young adults with sickle cell disease using the transition readiness assessment questionnaire. Pediatr Blood Cancer. 2022 02; 69(2):e29417. PMID: 34773444
  4. Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE. Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. JMIR Res Protoc. 2021 May 21; 10(5):e27650. PMID: 34018965; PMCID: PMC8178738; DOI: 10.2196/27650;
  5. Power-Hays A, Patterson A, Sobota A. Household material hardships impact emergency department reliance in pediatric patients with sickle cell disease. Pediatr Blood Cancer. 2020 10; 67(10):e28587. PMID: 32716125
  6. Vais S, Thomson L, Williams A, Sobota A. Rethinking Rideshares: A Transportation Assistance Pilot for Pediatric Patients with Sickle Cell Disease. J Health Care Poor Underserved. 2020; 31(3):1457-1470. PMID: 33416705
  7. Power-Hays A, Li S, Mensah A, Sobota A. Universal screening for social determinants of health in pediatric sickle cell disease: A quality-improvement initiative. Pediatr Blood Cancer. 2020 01; 67(1):e28006. PMID: 31571379; PMCID: PMC6868301; DOI: 10.1002/pbc.28006;
  8. Melita N, Diaz-Linhart Y, Kavanagh PL, Sobota A. Developing a Problem-solving Intervention to Improve Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease. J Pediatr Nurs. 2019 May - Jun; 46:26-32.View Related Profiles. PMID: 30826724
  9. Akinbami AO, Sobota AE, Luo HY, Chui DHK, Steinberg MH. A Mild Phenotype of Severe ß+ Thalassemia in a 16-Month-Old Boy. J Pediatr Hematol Oncol. 2018 04; 40(3):e145-e147.View Related Profiles. PMID: 29309373
  10. Lewen MO, Kavanagh PL, Sobota AE. A comment on improving transcranial Doppler ultrasonography screening in children with sickle cell anemia. Am J Hematol. 2017 06; 92(6):E121-E122.View Related Profiles. PMID: 28335074; DOI: 10.1002/ajh.24727;
Showing 10 of 29 results. Show More

This graph shows the total number of publications by year, by first, middle/unknown, or last author.

Bar chart showing 29 publications over 14 distinct years, with a maximum of 6 publications in 2014

In addition to these self-described keywords below, a list of MeSH based concepts is available here.

sickle cell disease, transition, quality improvement
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850 Harrison Ave
Boston MA 02118
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