Amy Sobota | Profiles RNS

Amy Sobota, MD

Associate Professor

Boston University Chobanian & Avedisian School of Medicine

Pediatrics

MD, University of Wisconsin Madison
MPH, Harvard School of Public Health
BA, Harvard College
BA, Radcliffe College

Websites

Boston Medical Center Provider Profile

ORCID : 0000-0003-3979-7435

Member
Boston University
Center of Excellence in Sickle Cell Disease

BMC Research
NIH RePORTER Research

Engaging Parents of Children with Sickle Cell Anemia and their Providers in Shared-Decision…
03/01/2019 - 02/28/2021 (PI)
Children’s Hospital Medical Center - Cincinnati Patient-Centered Out

Development of Problem Solving Intervention to Improve Self-Management and Transition Readiness…
01/01/2017 - 12/31/2020 (PI)
National Institutes of Health/DHHS/NIH National Heart, Lung
1K23HL135436-02

Improving the Transition from Pediatrics to Adult Care for Patients with Sickle Cell Disease.
07/01/2016 - 06/30/2019 (PI)
American Society of Hematology

Clinical Hematology Research Career Development Award: K 12 Harvard Blood Scholars
10/01/2013 - 09/30/2015 (PI)
Children's Hospital NIH-NHLBI

Title

Yr	Title	Project-Sub Proj
2020	Development of a Problem Solving Intervention to Improve Self-Management and Transition Readiness for Adolescents with Sickle Cell Disease	5K23HL135436-04
2019	Development of a Problem Solving Intervention to Improve Self-Management and Transition Readiness for Adolescents with Sickle Cell Disease	5K23HL135436-03
2018	Development of a Problem Solving Intervention to Improve Self-Management and Transition Readiness for Adolescents with Sickle Cell Disease	5K23HL135436-02
2017	Development of a Problem Solving Intervention to Improve Self-Management and Transition Readiness for Adolescents with Sickle Cell Disease	1K23HL135436-01

Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.

iCite Analysis Copy PMIDs To Clipboard

Lo ZC, Sobota AE. Maintenance of a High Influenza Vaccination Rate and Improvement in Health Outcomes in a Pediatric Sickle Cell Disease Clinic. J Pediatr Hematol Oncol. 2022 01 01; 44(1):e46-e50. PMID: 33974583; PMCID: PMC8581069; DOI: 10.1097/MPH.0000000000002192;

Slingerland AL, Karsten MB, Smith ER, Sobota AE, See AP. Two Sides of a Coin: Case Report of Unilateral Synangiosis and Contralateral Stroke Highlighting Consequences of Disease Progression and Efficacy of Revascularization in Sickle Cell Disease-Associated Moyamoya Syndrome. Acta Haematol. 2022; 145(4):458-464. PMID: 34879377

Oberoi AR, Patterson A, Sobota A. Measuring transition readiness in adolescents and young adults with sickle cell disease using the transition readiness assessment questionnaire. Pediatr Blood Cancer. 2022 02; 69(2):e29417. PMID: 34773444

Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE. Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial. JMIR Res Protoc. 2021 May 21; 10(5):e27650. PMID: 34018965; PMCID: PMC8178738; DOI: 10.2196/27650;

Power-Hays A, Patterson A, Sobota A. Household material hardships impact emergency department reliance in pediatric patients with sickle cell disease. Pediatr Blood Cancer. 2020 10; 67(10):e28587. PMID: 32716125

Vais S, Thomson L, Williams A, Sobota A. Rethinking Rideshares: A Transportation Assistance Pilot for Pediatric Patients with Sickle Cell Disease. J Health Care Poor Underserved. 2020; 31(3):1457-1470. PMID: 33416705

Power-Hays A, Li S, Mensah A, Sobota A. Universal screening for social determinants of health in pediatric sickle cell disease: A quality-improvement initiative. Pediatr Blood Cancer. 2020 01; 67(1):e28006. PMID: 31571379; PMCID: PMC6868301; DOI: 10.1002/pbc.28006;

Melita N, Diaz-Linhart Y, Kavanagh PL, Sobota A. Developing a Problem-solving Intervention to Improve Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease. J Pediatr Nurs. 2019 May - Jun; 46:26-32.View Related Profiles.

Sobota, Amy
Kavanagh, Patricia

PMID: 30826724

Akinbami AO, Sobota AE, Luo HY, Chui DHK, Steinberg MH. A Mild Phenotype of Severe ß+ Thalassemia in a 16-Month-Old Boy. J Pediatr Hematol Oncol. 2018 04; 40(3):e145-e147.View Related Profiles.

Sobota, Amy
Chui, David
Steinberg, Martin

PMID: 29309373

Lewen MO, Kavanagh PL, Sobota AE. A comment on improving transcranial Doppler ultrasonography screening in children with sickle cell anemia. Am J Hematol. 2017 06; 92(6):E121-E122.View Related Profiles.

Sobota, Amy
Kavanagh, Patricia

PMID: 28335074; DOI: 10.1002/ajh.24727;

Showing 10 of 29 results. Show More

Sobota AE, Shah N, Mack JW. Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2017 Jun; 64(6). PMID: 27905689; DOI: 10.1002/pbc.26374;

Sobota AE, Umeh E, Mack JW. Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease. J Hematol Res. 2015 Dec; 2(1):17-24. PMID: 27175364; PMCID: PMC4862600; DOI: 10.12974/2312-5411.2015.02.01.3;

Bryant R, Porter JS, Sobota A, Association of Pediatric Hematology/Oncology Nurses, American Society of Pediatri Hematology Oncology. APHON/ASPHO Policy Statement for the Transition of Patients With Sickle Cell Disease From Pediatric to Adult Health Care. J Pediatr Oncol Nurs. 2015 Nov-Dec; 32(6):355-9. PMID: 26464507; DOI: 10.1177/1043454215591954;

Kavanagh PL, Sprinz PG, Wolfgang TL, Killius K, Champigny M, Sobota A, Dorfman D, Barry K, Miner R, Moses JM. Improving the Management of Vaso-Occlusive Episodes in the Pediatric Emergency Department. Pediatrics. 2015 Oct; 136(4):e1016-25.View Related Profiles.

Sobota, Amy
Dorfman, David
Moses, James
Kavanagh, Patricia

PMID: 26391933; DOI: 10.1542/peds.2014-3470;

Sobota A, Sabharwal V, Fonebi G, Steinberg M. How we prevent and manage infection in sickle cell disease. Br J Haematol. 2015 Sep; 170(6):757-67.View Related Profiles.

Sobota, Amy
Steinberg, Martin
Sabharwal, Vishakha

PMID: 26018640; DOI: 10.1111/bjh.13526;

Sobota AE, Kavanagh PL, Adams WG, McClure E, Farrell D, Sprinz PG. Improvement in influenza vaccination rates in a pediatric sickle cell disease clinic. Pediatr Blood Cancer. 2015 Apr; 62(4):654-7.View Related Profiles.

Sobota, Amy
Kavanagh, Patricia
Adams, William

PMID: 25545967; PMCID: PMC5712840; DOI: 10.1002/pbc.25390;

Hatoun J, Sobota A, Meyers A. Using Reticulocyte Hemoglobin Equivalent to Screen for Iron Deficiency May Be Problematic. Glob Pediatr Health. 2014; 1:2333794X14557030.View Related Profiles.

Meyers, Alan
Sobota, Amy

PMID: 27335916; PMCID: PMC4804674; DOI: 10.1177/2333794X14557030;

Sobota A, Akinlonu A, Champigny M, Eldridge M, McMahon L, Telfair J, Sprinz P. Self-reported transition readiness among young adults with sickle cell disease. J Pediatr Hematol Oncol. 2014 Jul; 36(5):389-94. PMID: 24517960; PMCID: PMC4545263; DOI: 10.1097/MPH.0000000000000110;

Trachtenberg FL, Gerstenberger E, Xu Y, Mednick L, Sobota A, Ware H, Thompson AA, Neufeld EJ, Yamashita R. Relationship among chelator adherence, change in chelators, and quality of life in thalassemia. Qual Life Res. 2014 Oct; 23(8):2277-88. PMID: 24682717; PMCID: PMC4315322; DOI: 10.1007/s11136-014-0671-2;

Jonathan Hatoun, MD, MPHAmy Sobota, MD, MPHAlan Meyers, MD, MPH. Using Reticulocyte Hemoglobin Equivalent to Screen for Iron Deficiency May Be Problematic. Global Pediatric Health. 2014; 1. View Publication

Fernandes SM, O'Sullivan-Oliveira J, Landzberg MJ, Khairy P, Melvin P, Sawicki GS, Ziniel S, Kenney LB, Garvey KC, Sobota A, O'Brien R, Nigrovic PA, Sharma N, Fishman LN. Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective. J Pediatr Rehabil Med. 2014; 7(1):43-51. PMID: 24919937; PMCID: PMC5727574; DOI: 10.3233/PRM-140269;

Trachtenberg FL, Mednick L, Kwiatkowski JL, Neufeld EJ, Haines D, Pakbaz Z, Thompson AA, Quinn CT, Grady R, Sobota A, Olivieri N, Horne R, Yamashita R. Beliefs about chelation among thalassemia patients. Health Qual Life Outcomes. 2012; 10:148. PMID: 23216870; PMCID: PMC3545841; DOI: 10.1186/1477-7525-10-148;

Sobota A, Graham DA, Neufeld EJ, Heeney MM. Thirty-day readmission rates following hospitalization for pediatric sickle cell crisis at freestanding children's hospitals: risk factors and hospital variation. Pediatr Blood Cancer. 2012 Jan; 58(1):61-5. PMID: 21674766; PMCID: PMC4581528; DOI: 10.1002/pbc.23221;

Sobota A, Neufeld EJ, Sprinz P, Heeney MM. Transition from pediatric to adult care for sickle cell disease: results of a survey of pediatric providers. Am J Hematol. 2011 Jun; 86(6):512-5.View Related Profiles.

Sobota, Amy
Sprinz, Phillipa

PMID: 21594889; PMCID: PMC5804481; DOI: 10.1002/ajh.22016;

Trachtenberg F, Vichinsky E, Haines D, Pakbaz Z, Mednick L, Sobota A, Kwiatkowski J, Thompson AA, Porter J, Coates T, Giardina PJ, Olivieri N, Yamashita R, Neufeld EJ. Iron chelation adherence to deferoxamine and deferasirox in thalassemia. Am J Hematol. 2011 May; 86(5):433-6. PMID: 21523808; PMCID: PMC4599708; DOI: 10.1002/ajh.21993;

Sobota A, Yamashita R, Xu Y, Trachtenberg F, Kohlbry P, Kleinert DA, Giardina PJ, Kwiatkowski JL, Foote D, Thayalasuthan V, Porter JB, Thompson AA, Schilling L, Quinn CT, Neufeld EJ. Quality of life in thalassemia: a comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms. Am J Hematol. 2011 Jan; 86(1):92-5. PMID: 21061309; PMCID: PMC4250926; DOI: 10.1002/ajh.21896;

Sobota A, Graham DA, Heeney MM, Neufeld EJ. Corticosteroids for acute chest syndrome in children with sickle cell disease: variation in use and association with length of stay and readmission. Am J Hematol. 2010 Jan; 85(1):24-8. PMID: 19957348; PMCID: PMC5747259; DOI: 10.1002/ajh.21565;

Sobota A, Neufeld EJ, Lapsia S, Bennett CM. Response to mercaptopurine for refractory autoimmune cytopenias in children. Pediatr Blood Cancer. 2009 Jan; 52(1):80-4. PMID: 18726904; PMCID: PMC2585152; DOI: 10.1002/pbc.21729;

Sobota A, Pena M, Santi M, Ali Ahmed A. Undifferentiated sinonasal carcinoma in a patient with nevoid basal cell carcinoma syndrome. Int J Surg Pathol. 2007 Jul; 15(3):303-6. PMID: 17652545

This graph shows the total number of publications by year, by first, middle/unknown, or last author.

Bar chart showing 29 publications over 14 distinct years, with a maximum of 6 publications in 2014

Bar chart showing 29 publications over 14 distinct years, with a maximum of 6 publications in 2014

Year	Publications
2007	1
2009	1
2010	1
2011	4
2012	1
2014	6
2015	4
2016	1
2017	1
2018	1
2019	2
2020	2
2021	3
2022	1

Media Mentions

Protecting Patients from Energy Insecurity Requires Universal Screening

HealthCity 11/18/2019

McCourty Twins Host 5th Annual Tackle Sickle Cell Casino Night

CBS Boston 10/28/2019

Parents Give 'Smile Packs' to Pediatric Cancer Patients in Honor of Their Daughter Who Died From a Tumor

Yahoo 9/25/2019

In addition to these self-described keywords below, a list of MeSH based concepts is available here.

sickle cell disease, transition, quality improvement

Contact for Mentoring:

850 Harrison Ave
Boston MA 02118
Google Map

617.414.5562

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